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Appears in Collections:Psychology Journal Articles
Peer Review Status: Refereed
Title: Patient experience of gastrointestinal endoscopy: Informing the development of the Newcastle ENDOPREM
Author(s): Neilson, Laura J
Patterson, Joanne
von Wagner, Christian
Hewitson, Paul
McGregor, Lesley M
Sharp, Linda
Rees, Colin J
Issue Date: 3-Apr-2020
Citation: Neilson LJ, Patterson J, von Wagner C, Hewitson P, McGregor LM, Sharp L & Rees CJ (2020) Patient experience of gastrointestinal endoscopy: Informing the development of the Newcastle ENDOPREM. Frontline Gastroenterology, 11 (3), pp. 209-217.
Abstract: Background Measuring patient experience is important for evaluating the quality of patient care, identifying aspects requiring improvement and optimising patient outcomes. Patient Reported Experience Measures (PREMs) should, ideally, be patient derived, however no such PREMs for gastrointestinal (GI) endoscopy exist. This study explored the experiences of patients undergoing GI endoscopy and CT colonography (CTC) in order to: identify aspects of care important to them; determine whether the same themes are relevant across investigative modalities; develop the framework for a GI endoscopy PREM. Methods Patients aged ≥18 years who had undergone oesophagogastroduodenoscopy (OGD), colonoscopy or CTC for symptoms or surveillance (but not within the national bowel cancer screening programme) in one hospital were invited to participate in semi-structured interviews. Recruitment continued until data saturation. Inductive thematic analysis was undertaken. Results 35 patients were interviewed (15 OGD, 10 colonoscopy, 10 CTC). Most patients described their experience chronologically, and five ‘procedural stages’ were evident: before attending for the test; preparing for the test; at the hospital, before the test; during the test; after the test. Six themes were identified: anxiety; expectations; choice & control; communication & information; comfort; embarrassment & dignity. These were present for all three procedures but not all procedure stages. Some themes were inter-related (eg, expectations & anxiety; communication & anxiety). Conclusion We identified six key themes encapsulating patient experience of GI procedures and these themes were evident for all procedures and across multiple procedure stages. These findings will be used to inform the development of the Newcastle ENDOPREM™.
DOI Link: 10.1136/flgastro-2019-101321
Rights: This article has been accepted for publication in Frontline Gastroenterology, 2019 following peer review, and the Version of Record can be accessed online at © Authors Reuse of this manuscript version (excluding any databases, tables, diagrams, photographs and other images or illustrative material included where a another copyright owner is identified) is permitted strictly pursuant to the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC-BY-NC 4.0)
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