Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/9074
Appears in Collections:Psychology Journal Articles
Peer Review Status: Refereed
Title: Quality of life after traumatic brain injury: The clinical use of the QOLIBRI, a novel disease-specific instrument
Author(s): Truelle, Jean-Luc
Koskinen, Sanna
Hawthorne, Graeme
Sarajuuri, Jaana
Formisano, Rita
Von Wild, Klaus
Neugebauer, Edmund
Wilson, J T Lindsay
Gibbons, Henning
Powell, Jane
Bullinger, Monika
Hofer, Stefan
Maas, Andrew
Zitnay, George
Von Steinbuechel, Nicole
Contact Email: l.wilson@stir.ac.uk
Keywords: Traumatic brain injury
Health-related quality of life
Assessment
International
Multi-centre study
QOLIBRI
Issue Date: Oct-2010
Date Deposited: 12-Sep-2012
Citation: Truelle J, Koskinen S, Hawthorne G, Sarajuuri J, Formisano R, Von Wild K, Neugebauer E, Wilson JTL, Gibbons H, Powell J, Bullinger M, Hofer S, Maas A, Zitnay G & Von Steinbuechel N (2010) Quality of life after traumatic brain injury: The clinical use of the QOLIBRI, a novel disease-specific instrument. Brain Injury, 24 (11), pp. 1272-1291. https://doi.org/10.3109/02699052.2010.506865
Abstract: Objective: To report the clinical use of the QOLIBRI, a disease-specific measure of health-related quality-of-life (HRQoL) after traumatic brain injury (TBI).Methods: The QOLIBRI, with 37 items in six scales (cognition, self, daily life and autonomy, social relationships, emotions and physical problems) was completed by 795 patients in six languages (Finnish, German, Italian, French, English and Dutch). QOLIBRI scores were examined by variables likely to be influenced by rehabilitation interventions and included socio-demographic, functional outcome, health status and mental health variables.Results: The QOLIBRI was self-completed by 73% of participants and 27% completed it in interview. It was sensitive to areas of life amenable to intervention, such as accommodation, work participation, health status (including mental health) and functional outcome.Conclusion: The QOLIBRI provides information about patient's subjective perception of his/her HRQoL which supplements clinical measures and measures of functional outcome. It can be applied across different populations and cultures. It allows the identification of personal needs, the prioritization of therapeutic goals and the evaluation of individual progress. It may also be useful in clinical trials and in longitudinal studies of TBI recovery.
DOI Link: 10.3109/02699052.2010.506865
Rights: The publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.
Notes: Co-authored by the Qolibri Task Force.
Licence URL(s): http://www.rioxx.net/licenses/under-embargo-all-rights-reserved

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