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dc.contributor.authorLorenc, Avaen_UK
dc.contributor.authorGreaves, Colinen_UK
dc.contributor.authorDuda, Joanen_UK
dc.contributor.authorBrett, Joen_UK
dc.contributor.authorMatheson, Laurenen_UK
dc.contributor.authorFulton-Lieuw, Tessaen_UK
dc.contributor.authorSecher, Denisen_UK
dc.contributor.authorRhodes, Paten_UK
dc.contributor.authorOzakinci, Gozdeen_UK
dc.contributor.authorNankivell, Paulen_UK
dc.contributor.authorMehanna, Hishamen_UK
dc.contributor.authorJepson, Marcusen_UK
dc.description.abstractObjective The objective of this work was to explore head and neck cancer (HNC) patients' and their family members' views on acceptability and feasibility of patient-initiated follow-up (PIFU), including concerns and anticipated benefits. Methods Patients were recruited from UK HNC clinics, support groups and advocacy groups. They completed a survey (n = 144) and/or qualitative interview (n = 30), three with a family member. Qualitative data were analysed thematically, quantitative data using descriptive statistics. Results Preference for follow-up care in HNC was complex and individual. Many patients thought PIFU could beneficially reallocate health care resources and encourage self-management. Patients' main concerns with PIFU were losing the reassurance of regular clinic appointments and addressing mental well-being needs within PIFU, possibly using peer support. Patients were concerned about their ability to detect recurrence due to lack of expertise and information. They emphasised the importance of a reliable, direct and easy urgent appointment service and of feeling supported and heard by clinicians. Patients believed family and friends need support. Conclusion PIFU may be feasible and acceptable for certain HNC patients, providing it addresses support for mental well-being, provides quick, reliable and direct clinician access and information on “red flag” symptoms, and ensures patients and their caregivers feel supported.en_UK
dc.relationLorenc A, Greaves C, Duda J, Brett J, Matheson L, Fulton-Lieuw T, Secher D, Rhodes P, Ozakinci G, Nankivell P, Mehanna H & Jepson M (2022) Exploring the views of patients' and their family about patient-initiated follow-up in head and neck cancer: a mixed methods study. European Journal of Cancer Care.
dc.rights© 2022 The Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License (, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.en_UK
dc.subjecthead and neck canceren_UK
dc.subjectpatient educationen_UK
dc.subjectpatient informationen_UK
dc.subjectsupportive careen_UK
dc.titleExploring the views of patients' and their family about patient-initiated follow-up in head and neck cancer: a mixed methods studyen_UK
dc.typeJournal Articleen_UK
dc.citation.jtitleEuropean Journal of Cancer Careen_UK
dc.type.statusVoR - Version of Recorden_UK
dc.contributor.funderNIHR National Institute for Health Researchen_UK
dc.description.notesOutput Status: Forthcoming/Available Onlineen_UK
dc.contributor.affiliationUniversity of Bristolen_UK
dc.contributor.affiliationUniversity of Birminghamen_UK
dc.contributor.affiliationUniversity of Birminghamen_UK
dc.contributor.affiliationOxford Brookes Universityen_UK
dc.contributor.affiliationOxford Brookes Universityen_UK
dc.contributor.affiliationUniversity of Birminghamen_UK
dc.contributor.affiliationUniversity of Birminghamen_UK
dc.contributor.affiliationUniversity of Birminghamen_UK
dc.contributor.affiliationUniversity of Bristolen_UK
dc.relation.funderprojectPET-CT guided, symptom-based, patient initiated surveillance versus clinical follow-up in advanced head neck cancer (PET NECK 2)en_UK
rioxxterms.apcnot requireden_UK
rioxxterms.typeJournal Article/Reviewen_UK
local.rioxx.authorLorenc, Ava|en_UK
local.rioxx.authorGreaves, Colin|en_UK
local.rioxx.authorDuda, Joan|en_UK
local.rioxx.authorBrett, Jo|en_UK
local.rioxx.authorMatheson, Lauren|en_UK
local.rioxx.authorFulton-Lieuw, Tessa|en_UK
local.rioxx.authorSecher, Denis|en_UK
local.rioxx.authorRhodes, Pat|en_UK
local.rioxx.authorOzakinci, Gozde|0000-0001-5869-3274en_UK
local.rioxx.authorNankivell, Paul|en_UK
local.rioxx.authorMehanna, Hisham|en_UK
local.rioxx.authorJepson, Marcus|en_UK
local.rioxx.projectProject ID unknown|National Institute for Health Research|
Appears in Collections:Psychology Journal Articles

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