Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/33404
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dc.contributor.authorBotha, Moniqueen_UK
dc.date.accessioned2021-10-09T00:06:31Z-
dc.date.available2021-10-09T00:06:31Z-
dc.date.issued2021en_UK
dc.identifier.other727542en_UK
dc.identifier.urihttp://hdl.handle.net/1893/33404-
dc.description.abstractThere has been a focus on autistic-led and participatory research in autism research, but minimal discussion about whether the field is hospitable to autistic involvement. While the focus on participatory and/or autistic-led research is abundantly welcome, a wider conversation should also happen about how autistic people are treated in the process of knowledge creation. As such, I present a critical reflection on my experiences of academia as an autistic autism researcher. I open by questioning whether I am an academic, an activist, or an advocate before discussing my journey through academia, and my exposure to dehumanizing, objectifying, and violent accounts of autism. I highlight how the construction of objectivity has resulted in a failure to question the validity of these dehumanizing accounts of autism, which are regarded as “scientifically-sound” by virtue of their perceived “objectivity.” Furthermore, I discuss how the idea of objectivity is used to side-line autistic expertise in disingenuous ways, especially when this knowledge challenges the status-quo. Despite claiming to be value-free, these dehumanizing accounts of autism embody social and cultural values, with a complete lack of transparency or acknowledgment. I then discuss how these dehumanizing accounts and theories—entangled in values—reverberate into autistic people's lives and come to be ways of constituting us. Following this, I discuss the rationality of the anger autistic people feel when encountering these accounts, and instead of urging people to distance themselves from these emotions, I discuss the value of “leaning-in” as a radical act of dissent in the face of research-based violence. I then make a call to action urging all those who write or speak about autism to engage reflexively with how their values shape their understanding and construction of autistic people. Lastly, I conclude by answering my opening question: I have emerged as an advocate, activist, and academic. For me, belonging to the autistic community, acknowledging our marginalization, and recognizing our suffering within society means that hope for a better and just future has always, and will always underpin my work.en_UK
dc.language.isoenen_UK
dc.publisherFrontiers Media SAen_UK
dc.relationBotha M (2021) Academic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Production. Frontiers in Psychology, 12, Art. No.: 727542. https://doi.org/10.3389/fpsyg.2021.727542en_UK
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en_UK
dc.subjectautismen_UK
dc.subjectcritical reflectionen_UK
dc.subjectableismen_UK
dc.subjectepistemic injusticeen_UK
dc.subjectresearch violenceen_UK
dc.subjectsocial justiceen_UK
dc.subjectparticipatory researchen_UK
dc.subjectdehumanizationen_UK
dc.titleAcademic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Productionen_UK
dc.typeJournal Articleen_UK
dc.identifier.doi10.3389/fpsyg.2021.727542en_UK
dc.identifier.pmid34650484en_UK
dc.citation.jtitleFrontiers in Psychologyen_UK
dc.citation.issn1664-1078en_UK
dc.citation.volume12en_UK
dc.citation.publicationstatusPublisheden_UK
dc.citation.peerreviewedRefereeden_UK
dc.type.statusVoR - Version of Recorden_UK
dc.contributor.funderESRC Economic and Social Research Councilen_UK
dc.citation.date28/09/2021en_UK
dc.contributor.affiliationPsychologyen_UK
dc.identifier.isiWOS:000761672500001en_UK
dc.identifier.scopusid2-s2.0-85117139639en_UK
dc.identifier.wtid1762626en_UK
dc.contributor.orcid0000-0002-5935-9654en_UK
dc.date.accepted2021-08-27en_UK
dcterms.dateAccepted2021-08-27en_UK
dc.date.filedepositdate2021-10-08en_UK
dc.relation.funderprojectESRC Post-Doctoral Fellowships (PDF) Competition 2020en_UK
dc.relation.funderrefES/V012347/1en_UK
rioxxterms.apcpaiden_UK
rioxxterms.typeJournal Article/Reviewen_UK
rioxxterms.versionVoRen_UK
local.rioxx.authorBotha, Monique|0000-0002-5935-9654en_UK
local.rioxx.projectES/V012347/1|Economic and Social Research Council|http://dx.doi.org/10.13039/501100000269en_UK
local.rioxx.freetoreaddate2021-10-08en_UK
local.rioxx.licencehttp://creativecommons.org/licenses/by/4.0/|2021-10-08|en_UK
local.rioxx.filenamefpsyg-12-727542.pdfen_UK
local.rioxx.filecount1en_UK
local.rioxx.source1664-1078en_UK
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