Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/30613
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dc.contributor.authorO'Higgins, Siobhanen_UK
dc.contributor.authorStinson, Jenniferen_UK
dc.contributor.authorAhola Kohut, Saraen_UK
dc.contributor.authorCaes, Lineen_UK
dc.contributor.authorHeary, Carolineen_UK
dc.contributor.authorMcGuire, Brian Een_UK
dc.date.accessioned2020-01-14T01:01:22Z-
dc.date.available2020-01-14T01:01:22Z-
dc.date.issued2019-11en_UK
dc.identifier.othere027952en_UK
dc.identifier.urihttp://hdl.handle.net/1893/30613-
dc.description.abstractIntroduction Juvenile idiopathic arthritis (JIA) negatively affects adolescents’ everyday activities. To address the need for innovative, effective, convenient, low-cost psychosocial self-management programmes, we developed an Irish version of Canadian Teens Taking Charge (TTC) and integrated it with Skype-based peer support iPeer2Peer (iP2P). Objectives To explore the feasibility and preliminary outcome impact (effectiveness) of an integrated iP2P and Irish TTC, via three-arm (treatment as usual, TTC and iP2P–TTC) pilot randomised controlled trial (RCT); and determine feasibility and sample size for a full RCT. To ensure active involvement of adolescents with JIA via a Young Person Advisory Panel and examine how participants experienced the study. Finally, to see if TTC and iP2P with TTC reduce costs for families. Methods and analysis Recruitment of 60 families will be ongoing until July 2019, via healthcare professionals and support groups. Analysis will consist of single-blinded (outcome assessment), three-arm pilot RCT, using online questionnaires, with assessments at baseline (T1), after intervention (T2) and 3 months post-intervention (T3). The primary outcomes on feasibility with comparisons of TTC and iP2P–TTC on fidelity, acceptability and satisfaction, engagement and degrees of tailoring. The secondary outcomes will be self-management and self-efficacy and a range of health-related quality-of-life factors, pain indicators and costs. Participants from the intervention groups will be invited to share their perspectives on the process in semistructured interviews. Quantitative data will be analysed using SPSS V.21 and the audio-taped and transcribed qualitative data will be analysed using qualitative content analysis. Dissemination Via journal articles, conference presentations, co-delivered by key stakeholders when possible, launch of accessible, effective and sustainable Internet self-management and peer support for Irish adolescents with JIA.en_UK
dc.language.isoenen_UK
dc.publisherBMJ Publishing Groupen_UK
dc.relationO'Higgins S, Stinson J, Ahola Kohut S, Caes L, Heary C & McGuire BE (2019) Lending an Ear: iPeer2Peer plus Teens Taking Charge online self-management to empower adolescents with arthritis in Ireland: protocol for a pilot randomised controlled trial. BMJ Open, 9 (12), Art. No.: e027952. https://doi.org/10.1136/bmjopen-2018-027952en_UK
dc.rightsThis is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.en_UK
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/en_UK
dc.titleLending an Ear: iPeer2Peer plus Teens Taking Charge online self-management to empower adolescents with arthritis in Ireland: protocol for a pilot randomised controlled trialen_UK
dc.typeJournal Articleen_UK
dc.identifier.doi10.1136/bmjopen-2018-027952en_UK
dc.identifier.pmid31843817en_UK
dc.citation.jtitleBMJ Openen_UK
dc.citation.issn2044-6055en_UK
dc.citation.volume9en_UK
dc.citation.issue12en_UK
dc.citation.publicationstatusPublisheden_UK
dc.citation.peerreviewedRefereeden_UK
dc.type.statusVoR - Version of Recorden_UK
dc.citation.date15/12/2019en_UK
dc.contributor.affiliationNational University of Ireland - Galwayen_UK
dc.contributor.affiliationUniversity of Torontoen_UK
dc.contributor.affiliationUniversity of Torontoen_UK
dc.contributor.affiliationPsychologyen_UK
dc.contributor.affiliationNational University of Ireland - Galwayen_UK
dc.contributor.affiliationNational University of Ireland - Galwayen_UK
dc.identifier.scopusid2-s2.0-85076711127en_UK
dc.identifier.wtid1499448en_UK
dc.contributor.orcid0000-0001-7355-0706en_UK
dc.date.accepted2019-07-18en_UK
dc.date.filedepositdate2020-01-13en_UK
Appears in Collections:Psychology Journal Articles

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