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dc.contributor.authorKimbell, Barbaraen_UK
dc.contributor.authorMurray, Scott Aen_UK
dc.contributor.authorByrne, Heidien_UK
dc.contributor.authorBaird, Andreaen_UK
dc.contributor.authorHayes, Peter Cen_UK
dc.contributor.authorMacGilchrist, Alastairen_UK
dc.contributor.authorFinucane, Anneen_UK
dc.contributor.authorYoung, Patricia Brookesen_UK
dc.contributor.authorO'Carroll, Ronanen_UK
dc.contributor.authorWeir, Christopheren_UK
dc.contributor.authorKendall, Marilynen_UK
dc.contributor.authorBoyd, Kirstyen_UK
dc.description.abstractBackground:  Liver disease is an increasing cause of death worldwide but palliative care is largely absent for these patients.  Aim:  We conducted a feasibility trial of a complex intervention delivered by a supportive care liver nurse specialist to improve care coordination, anticipatory care planning and quality of life for people with advanced liver disease and their carers.  Design:  Patients received a 6-month intervention (alongside usual care) from a specially trained liver nurse specialist. The nurse supported patients/carers to live as well as possible with the condition and acted as a resource to facilitate care by community professionals. A mixed-method evaluation was conducted. Case note analysis and questionnaires examined resource use, care planning processes and quality-of-life outcomes over time. Interviews with patients, carers and professionals explored acceptability, effectiveness, feasibility and the intervention.  Setting/participants:  Patients with advanced liver disease who had an unplanned hospital admission with decompensated cirrhosis were recruited from an inpatient liver unit. The intervention was delivered to patients once they had returned home.  Results:  We recruited 47 patients, 27 family carers and 13 case-linked professionals. The intervention was acceptable to all participants. They welcomed access to additional expert advice, support and continuity of care. The intervention greatly increased the number of electronic summary care plans shared by primary care and hospitals. The Palliative care Outcome Scale and EuroQol-5D-5L questionnaire were suitable outcome measurement tools.  Conclusion:  This nurse-led intervention proved acceptable and feasible. We have refined the recruitment processes and outcome measures for a future randomised controlled trial.en_UK
dc.relationKimbell B, Murray SA, Byrne H, Baird A, Hayes PC, MacGilchrist A, Finucane A, Young PB, O'Carroll R, Weir C, Kendall M & Boyd K (2018) Palliative care for people with advanced liver disease: A feasibility trial of a supportive care liver nurse specialist, Palliative Medicine, 32 (5), pp. 919-929.
dc.rightsThis article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License ( which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (
dc.subjectLiver failureen_UK
dc.subjectpalliative careen_UK
dc.subjectsupportive careen_UK
dc.subjectcare planningen_UK
dc.subjectnurse specialisten_UK
dc.subjectfeasibility trialen_UK
dc.subjectgeneralist palliative careen_UK
dc.titlePalliative care for people with advanced liver disease: A feasibility trial of a supportive care liver nurse specialisten_UK
dc.typeJournal Articleen_UK
dc.citation.jtitlePalliative Medicineen_UK
dc.type.statusVoR - Version of Recorden_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.contributor.affiliationRoyal Infirmary of Edinburghen_UK
dc.contributor.affiliationRoyal Infirmary of Edinburghen_UK
dc.contributor.affiliationRoyal Infirmary of Edinburghen_UK
dc.contributor.affiliationRoyal Infirmary of Edinburghen_UK
dc.contributor.affiliationMarie Curie Cancer Careen_UK
dc.contributor.affiliationRoyal Infirmary of Edinburghen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.description.refREF Compliant by Deposit in Stirling's Repositoryen_UK
Appears in Collections:Psychology Journal Articles

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