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dc.contributor.authorSaetes, Sophiaen_UK
dc.contributor.authorHynes, Lisaen_UK
dc.contributor.authorMcGuire, Brianen_UK
dc.contributor.authorCaes, Lineen_UK
dc.description.abstractBackground  This systematic review is the first step in a study investigating the resilience methods and processes in families of children with juvenile idiopathic arthritis. In particular, this review will focus on chronic or persistent pain, as a common symptom of juvenile idiopathic arthritis, which is the most common rheumatic disease in childhood. The experience of persistent pain can add to the functional disability associated with juvenile idiopathic arthritis. Resilience has relevance to all areas of paediatric psychology, and targeted attention to child, sibling, and parent strengths within the context of paediatric chronic pain and juvenile idiopathic arthritis in particular will augment the field on numerous levels. The objective is to determine which resilience processes are associated with a favourable quality of life in terms of academic, communication, emotional, interpersonal, physical, psychological, and social well-being in families of children with chronic pain associated with JIA.  Methods/design  This systematic review will be conducted and reported in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses statement and the PRESS (Peer Review of Electronic Search Strategies) guideline.  Longitudinal, cross-sectional, and treatment studies written in English will be included, as will grey literature (i.e. conference abstracts and dissertations).  Studies involving participants who are 6–18years of age, have been diagnosed with juvenile idiopathic arthritis, are experiencing chronic pain, and are currently undergoing treatment will be included regardless of sex, arthritis type, and type of treatment. Studies including siblings who are 6–18years of age and the patient’s parents will be included.  Discussion  Research exploring resilience within the adult population is accruing. Shifting our focus to protective factors of resilience in the context of paediatric chronic pain, specifically juvenile idiopathic arthritis, is a novel and promising pursuit that has the potential to optimize and inform future clinical practice and interventions. A better understanding of the role of reliance in family adaptation will facilitate the development of more effective treatment approaches and lay the foundation for more effective self-management in paediatric chronic pain.  Systematic review registration  This protocol is registered with the International Prospective Register of Systematic Reviews (PROSPERO) database (registration: CRD42016047226).en_UK
dc.publisherBioMed Centralen_UK
dc.relationSaetes S, Hynes L, McGuire B & Caes L (2017) Family resilience and adaptive coping in children with juvenile idiopathic arthritis: protocol for a systematic review. Systematic Reviews, 6, Art. No.: 221.
dc.rights© The Author(s). 2017 This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (, which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver ( applies to the data made available in this article, unless otherwise stated.en_UK
dc.titleFamily resilience and adaptive coping in children with juvenile idiopathic arthritis: protocol for a systematic reviewen_UK
dc.typeJournal Articleen_UK
dc.citation.jtitleSystematic Reviewsen_UK
dc.type.statusVoR - Version of Recorden_UK
dc.contributor.affiliationNational University of Ireland - Galwayen_UK
dc.contributor.affiliationWest Virginia Universityen_UK
dc.contributor.affiliationNational University of Ireland - Galwayen_UK
Appears in Collections:Psychology Journal Articles

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