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Appears in Collections:Psychology Journal Articles
Peer Review Status: Refereed
Title: Quality of life in persons after traumatic brain injury as self-perceived and as perceived by the caregivers
Author(s): Formisano, Rita
Longo, Eloise
Azicnuda, Eva
Silvestro, Daniela
D'Ippolito, Mariagrazia
Truelle, Jean-Luc
Von Steinbuchel, Nicole
Von Wild, Klaus
Wilson, J T Lindsay
Rigon, Jessica
Barba, Carmen
Forcina, Antonio
Giustini, Marco
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Keywords: Caregiver
Health-related quality of life
Traumatic brain injury
Issue Date: Feb-2017
Citation: Formisano R, Longo E, Azicnuda E, Silvestro D, D'Ippolito M, Truelle J, Von Steinbuchel N, Von Wild K, Wilson JTL, Rigon J, Barba C, Forcina A & Giustini M (2017) Quality of life in persons after traumatic brain injury as self-perceived and as perceived by the caregivers, Neurological Sciences, 38 (2), pp. 279-286.
Abstract: The primary aim of the study was to adopt QOLIBRI (quality of life after brain injury) questionnaire in a proxy version (Q-Pro), i.e., to use caregivers for comparison and to evaluate whether TBI patients’ judgment corresponds to that of their caregivers since the possible self-awareness deficit of the persons with TBI. A preliminary sample of 19 outpatients with TBI and their proxies was first evaluated with the Patient Competency Rating Scale to assess patients’ self-awareness; then they were evaluated with the QOLIBRI Patient version (Q-Pt) and a patient-centered version of the Q-Pro. Subsequently, 55 patients and their caregivers were evaluated using the patient-centered and the caregiver-centered Q-Pro versions. Q-Pt for assessing Quality of Life (QoL) after TBI, as patients’ subjective perspective and Q-Pro to assess the QoL of patients as perceived by the caregivers. The majority of patients (62.2%) showed better self-perception of QoL than their proxies; however, patients with low self-awareness were less satisfied than patients with adequate self-awareness. Low self-awareness does not impair the ability of patients with TBI to report on satisfaction with QoL as self-perceived.
DOI Link: 10.1007/s10072-016-2755-y
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