Please use this identifier to cite or link to this item:
Full metadata record
DC FieldValueLanguage
dc.contributor.advisorBowes, Alison-
dc.contributor.advisorRobertson, Jane-
dc.contributor.authorAshworth, Rosalie Marie-
dc.description.abstractDiagnosis of Alzheimer’s disease is encouraged as a first step towards people planning for their future with the condition. Despite the proposed benefits of diagnosis, it is also widely recognised that Alzheimer’s disease can expose people to stigma. Therefore, this thesis explores the relationship between stigma and future outlook, from the perspective of people affected by early and late-onset Alzheimer’s disease. In order to recognise the physicality of the condition and how psychological and social factors influence experiences, a biopsychosocial perspective is employed throughout. People with Alzheimer’s disease (n=15 people with late-onset, 7 people with early-onset) and their supporters (n=22) completed questionnaires about perceived stigma. This was followed by 14 interviews with a subsample of participants, which explored stigma and future outlook in more depth. Perceived stigma reporting across participants was low in the questionnaires; whereas interviews revealed higher levels of stigma with people discussing mixed, unpredictable reactions from a range of sources. Participants expressed awareness of the unpredictable nature of their futures with the condition. The subsequent lack of control was managed through focusing on ‘one day at a time’ and avoiding looking too far ahead. Across reflections on stigma and future outlook there was a deliberate focus on positive experiences for people affected by early and late-onset Alzheimer’s disease. The similar management of experiences across participants minimised possible age-based differences. These findings are supported by socioemotional selectivity theory, which suggests people are motivated to maintain positive emotional states when facing ‘time-limiting’ conditions irrespective of age. The research suggests people’s experiences of stigma and future outlook interact, with stigma-driven assumptions about the future affecting how people manage their daily lives. The avoidance of looking ahead suggests that policy which encourages future planning should consider its utility and explore ways of helping people to manage both exposure to stigma, and planning for the future, whilst focusing on daily living.en_GB
dc.publisherUniversity of Stirlingen_GB
dc.subjectFuture Planningen_GB
dc.subjectFuture Outlooken_GB
dc.subjectIllness experienceen_GB
dc.subjectCognitive biasen_GB
dc.subjectSocioemotional Selectivity Theoryen_GB
dc.subjectModified Labelling Theoryen_GB
dc.subject.lcshAlzheimer's diseaseen_GB
dc.subject.lcshAlzheimer's disease Social aspectsen_GB
dc.titleExperiences of Early and Late-Onset Alzheimer's Disease: Perceptions of Stigma and Future Outlooken_GB
dc.typeThesis or Dissertationen_GB
dc.type.qualificationnameDoctor of Philosophyen_GB
dc.rights.embargoreasonI would like to delay access until October 2018 to give sufficient time to publish the key findings of the PhD.en_GB
dc.contributor.funderUniversity of Stirling and the Neuroprogressive and Dementia Network (formally known as the Scottish Dementia Clinical Research Network).en_GB
Appears in Collections:Faculty of Social Sciences eTheses

Files in This Item:
File Description SizeFormat 
RAshworth Thesis Final Submission Oct 16.pdfPhD Thesis2.86 MBAdobe PDFView/Open

This item is protected by original copyright

Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.

The metadata of the records in the Repository are available under the CC0 public domain dedication: No Rights Reserved

If you believe that any material held in STORRE infringes copyright, please contact providing details and we will remove the Work from public display in STORRE and investigate your claim.