Please use this identifier to cite or link to this item:
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: Imagined futures: How experiential knowledge of disability affects parents' decision making about fetal abnormality
Author(s): France, Emma
Locock, Louise
Hunt, Kathryn
Ziebland, Sue B
Field, Kate
Wyke, Sally
Contact Email:
Keywords: abortion
decision making
fetal abnormality
prenatal diagnosis
Issue Date: Jun-2012
Citation: France E, Locock L, Hunt K, Ziebland SB, Field K & Wyke S (2012) Imagined futures: How experiential knowledge of disability affects parents' decision making about fetal abnormality, Health Expectations, 15 (2), pp. 139-156.
Abstract: Background: Knowledge of disability is considered key information to enable informed antenatal screening decisions by expectant parents. However, little is known about the role of experiential knowledge of disability in decisions to terminate or continue with a pregnancy diagnosed with a fetal abnormality. Objective: To explore the role that expectant parents' experiential knowledge of disabilities and conditions can play in real-life decisions to continue or end a pregnancy with a fetal abnormality. Design: Secondary analysis of qualitative narrative interview data informed by contextual systems framework. Setting: Participants were recruited throughout the United Kingdom and interviewed between 2004 and 2006. Participants: Twenty-four women and four of their male partners who had direct or indirect experience of disability or illness and who had proceeded with or ended a pregnancy diagnosed with a fetal abnormality. Findings: Most respondents recounted using their experiential knowledge of disability, whether of their unborn baby's condition or of a different condition, to try to imagine the future for their unborn child, themselves and their family when making their decision. Some, who were considering continuing their pregnancy and had little or no experience of their unborn baby's specific disability, sought out others' experiences of the condition following antenatal diagnosis.The nature of a parent's experiential knowledge did not predict whether they continued with or terminated their pregnancy. Discussion: Prospective parents may find it helpful to discuss their existing knowledge of their unborn baby's condition with health professionals who are aware of the influence this might have on parents' decisions.
DOI Link:
Rights: The publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.

Files in This Item:
File Description SizeFormat 
FranceEtAlImaginedFuturesPublishedOnlineMay12.pdf149.9 kBAdobe PDFUnder Permanent Embargo    Request a copy

Note: If any of the files in this item are currently embargoed, you can request a copy directly from the author by clicking the padlock icon above. However, this facility is dependent on the depositor still being contactable at their original email address.

This item is protected by original copyright

Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.

If you believe that any material held in STORRE infringes copyright, please contact providing details and we will remove the Work from public display in STORRE and investigate your claim.