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dc.contributor.authorFrance, Emma-
dc.contributor.authorLocock, Louise-
dc.contributor.authorHunt, Kathryn-
dc.contributor.authorZiebland, Sue B-
dc.contributor.authorField, Kate-
dc.contributor.authorWyke, Sally-
dc.description.abstractBackground: Knowledge of disability is considered key information to enable informed antenatal screening decisions by expectant parents. However, little is known about the role of experiential knowledge of disability in decisions to terminate or continue with a pregnancy diagnosed with a fetal abnormality. Objective: To explore the role that expectant parents' experiential knowledge of disabilities and conditions can play in real-life decisions to continue or end a pregnancy with a fetal abnormality. Design: Secondary analysis of qualitative narrative interview data informed by contextual systems framework. Setting: Participants were recruited throughout the United Kingdom and interviewed between 2004 and 2006. Participants: Twenty-four women and four of their male partners who had direct or indirect experience of disability or illness and who had proceeded with or ended a pregnancy diagnosed with a fetal abnormality. Findings: Most respondents recounted using their experiential knowledge of disability, whether of their unborn baby's condition or of a different condition, to try to imagine the future for their unborn child, themselves and their family when making their decision. Some, who were considering continuing their pregnancy and had little or no experience of their unborn baby's specific disability, sought out others' experiences of the condition following antenatal diagnosis.The nature of a parent's experiential knowledge did not predict whether they continued with or terminated their pregnancy. Discussion: Prospective parents may find it helpful to discuss their existing knowledge of their unborn baby's condition with health professionals who are aware of the influence this might have on parents' decisions.en_UK
dc.publisherBlackwell Publishing-
dc.relationFrance E, Locock L, Hunt K, Ziebland SB, Field K & Wyke S (2012) Imagined futures: How experiential knowledge of disability affects parents' decision making about fetal abnormality, Health Expectations, 15 (2), pp. 139-156.-
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.-
dc.subjectdecision makingen_UK
dc.subjectfetal abnormalityen_UK
dc.subjectprenatal diagnosisen_UK
dc.subject.lcshFetal monitoring Handbooks, manuals, etc-
dc.subject.lcshFetal Diseases diagnosis Handbooks.-
dc.titleImagined futures: How experiential knowledge of disability affects parents' decision making about fetal abnormalityen_UK
dc.typeJournal Articleen_UK
dc.rights.embargoreasonThe publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.-
dc.citation.jtitleHealth Expectations-
dc.type.statusPublisher version (final published refereed version)-
dc.contributor.affiliationHS Research - Stirling-
dc.contributor.affiliationUniversity of Oxford-
dc.contributor.affiliationInstitute for Social Marketing-
dc.contributor.affiliationUniversity of Oxford-
dc.contributor.affiliationUniversity of Oxford-
dc.contributor.affiliationNMAHP Research-
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

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