Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/876
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dc.contributor.authorMalcolm, Carien_UK
dc.contributor.authorKnighting, Katherineen_UK
dc.contributor.authorForbat, Lizen_UK
dc.contributor.authorKearney, Noraen_UK
dc.date.accessioned2014-09-12T14:45:18Z-
dc.date.available2014-09-12T14:45:18Zen_UK
dc.date.issued2009-07en_UK
dc.identifier.urihttp://hdl.handle.net/1893/876-
dc.description.abstractThe Delphi process, widely used in health research to seek consensus on key issues amongst large stakeholder groups, was adopted to allow families, hospice staff/volunteers and linked professionals to identify and prioritise future research priorities for children’s hospice care. In the qualitative Round 1, interviews with families (n = 5), linked professionals (n = 18) and focus groups with hospice staff and volunteers (n = 44) led to the generation of 56 research topics categorised within 14 broad theme. To give a larger number of stakeholders (n = 621) (including families n = 293; hospice staff/volunteers n = 216 and professionals n = 112) the opportunity to rate the importance of each research topic and seek group consensus on the future research priorities for children’s hospice care, subsequent Rounds 2 and 3 involved the use of postal questionnaires. Response rates to questionnaires were 44% in Round 2 (274/621) and 83% in Round 3 (204/247). Participants prioritised research topics relating to 1) hospice and respite care needs of young people (aged 16 +), 2) pain and symptom management and 3) bereavement and end-of-life care. There was wide acknowledgement by those took part in the process of the difficulty in rating the topics, and emphasis on the fact that all of the topics raised during the project are of high importance and merit further research. The current salient issues perceived by key stakeholders as being the research priorities for children’s hospice care were identified. Addressing the priority topics for research identified in this project would further contribute to the development of a much needed evidence base in children’s hospice and palliative care research and optimise the delivery of children’s hospice services that are underpinned by valid and robust research.en_UK
dc.language.isoenen_UK
dc.publisherSageen_UK
dc.relationMalcolm C, Knighting K, Forbat L & Kearney N (2009) Prioritisation of future research topics for children's hospice care by its key stakeholders: a Delphi study. Palliative Medicine, 23 (5), pp. 298-405. https://doi.org/10.1177/0269216309104061en_UK
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author; you can only request a copy if you wish to use this work for your own research or private study.en_UK
dc.subjectchildrenen_UK
dc.subjectDelphi Studyen_UK
dc.subjectfutureen_UK
dc.subjecthospiceen_UK
dc.subjectresearchen_UK
dc.subjectHospice careen_UK
dc.subjectdisable childrenen_UK
dc.subjectpalliative careen_UK
dc.titlePrioritisation of future research topics for children's hospice care by its key stakeholders: a Delphi studyen_UK
dc.typeJournal Articleen_UK
dc.rights.embargodate3000-01-01en_UK
dc.rights.embargoreason[Prioritisation of future research topics for childrens hospice.pdf] The publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.en_UK
dc.identifier.doi10.1177/0269216309104061en_UK
dc.citation.jtitlePalliative Medicineen_UK
dc.citation.issn0269-2163en_UK
dc.citation.volume23en_UK
dc.citation.issue5en_UK
dc.citation.spage298en_UK
dc.citation.epage405en_UK
dc.citation.publicationstatusPublisheden_UK
dc.citation.peerreviewedRefereeden_UK
dc.type.statusVoR - Version of Recorden_UK
dc.author.emailelizabeth.forbat1@stir.ac.uken_UK
dc.contributor.affiliationHealth Sciences Research - Stirling - LEGACYen_UK
dc.contributor.affiliationCancer Care Research Centre - LEGACYen_UK
dc.contributor.affiliationCancer Care Research Centre - LEGACYen_UK
dc.contributor.affiliationHealth Sciences Research - Stirling - LEGACYen_UK
dc.identifier.isiWOS:000266941500003en_UK
dc.identifier.scopusid2-s2.0-67649352653en_UK
dc.identifier.wtid813337en_UK
dc.contributor.orcid0000-0002-7218-5775en_UK
dc.date.filedepositdate2009-03-04en_UK
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

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