1. STORRE
  2. Faculty of Health Sciences and Sport
  3. Faculty of Health Sciences and Sport Journal Articles
Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/34875
Full metadata record
DC FieldValueLanguage
dc.contributor.authorJacobs, Paulaen_UK
dc.contributor.authorQuayle, Ethelen_UK
dc.contributor.authorWilkinson, Heatheren_UK
dc.date.accessioned2023-02-21T01:02:41Z-
dc.date.available2023-02-21T01:02:41Z-
dc.identifier.urihttp://hdl.handle.net/1893/34875-
dc.description.abstractOld age is still an under-researched stage in the lives of people with a learning disability. Providing support to people towards the end of their lives can be challenging for services and involves complex ethical decision-making processes. This study explored the experiences of social care staff in two life-sharing communities, where adults with a learning disability and staff live together. Four main themes were identified, highlighting different dimensions of care. This included an emphasis on relational care, responsive care, collaborative care, and lastly practices that allowed or hindered people with a learning disability to stay within the communities till the end of their lifeen_UK
dc.language.isoenen_UK
dc.publisherBristol University Pressen_UK
dc.relationJacobs P, Quayle E & Wilkinson H (2023) "What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?": exploring care relationships at the end of life in two life-sharing communities for people with a learning disability. <i>International Journal of Care and Caring</i>.en_UK
dc.rightsThis item has been embargoed for a period. During the embargo please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study. This is a post-peer-review, pre-copy edited version of an article published in International Journal of Care and Caring. The definitive publisher-authenticated version Jacobs P, Quayle E & Wilkinson H (2023) "What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?": exploring care relationships at the end of life in two life-sharing communities for people with a learning disability. <i>International Journal of Care and Caring</i> will be available online at: https://bristoluniversitypressdigital.com/view/journals/ijcc/ijcc-overview.xmlen_UK
dc.rights.urihttps://storre.stir.ac.uk/STORREEndUserLicence.pdfen_UK
dc.title"What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?": exploring care relationships at the end of life in two life-sharing communities for people with a learning disabilityen_UK
dc.typeJournal Articleen_UK
dc.rights.embargodate2026-01-25en_UK
dc.rights.embargoreason[artice for journal of care and caring_final.pdf] Publisher requires embargo of 12 months after publication.en_UK
dc.citation.jtitleInternational Journal of Care and Caringen_UK
dc.citation.issn2397-883Xen_UK
dc.citation.issn2397-8821en_UK
dc.citation.peerreviewedRefereeden_UK
dc.type.statusAM - Accepted Manuscripten_UK
dc.contributor.funderUniversity of Edinburghen_UK
dc.author.emailpaula.jacobs@stir.ac.uken_UK
dc.description.notesOutput Status: Forthcomingen_UK
dc.contributor.affiliationHealth Sciences Stirlingen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.identifier.wtid1881938en_UK
dc.contributor.orcid0000-0001-5593-5899en_UK
dc.date.accepted2023-01-25en_UK
dcterms.dateAccepted2023-01-25en_UK
dc.date.filedepositdate2023-02-16en_UK
rioxxterms.apcnot requireden_UK
rioxxterms.typeJournal Article/Reviewen_UK
rioxxterms.versionAMen_UK
local.rioxx.authorJacobs, Paula|0000-0001-5593-5899en_UK
local.rioxx.authorQuayle, Ethel|en_UK
local.rioxx.authorWilkinson, Heather|en_UK
local.rioxx.projectProject ID unknown|University of Edinburgh|http://dx.doi.org/10.13039/501100000848en_UK
local.rioxx.freetoreaddate2026-01-25en_UK
local.rioxx.licencehttp://www.rioxx.net/licenses/under-embargo-all-rights-reserved||2026-01-24en_UK
local.rioxx.licencehttps://storre.stir.ac.uk/STORREEndUserLicence.pdf|2026-01-25|en_UK
local.rioxx.filenameartice for journal of care and caring_final.pdfen_UK
local.rioxx.filecount1en_UK
local.rioxx.source2397-883Xen_UK
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

Files in This Item:
File Description SizeFormat 
artice for journal of care and caring_final.pdfFulltext - Accepted Version292.4 kBAdobe PDFUnder Embargo until 2026-01-25    Request a copy


This item is protected by original copyright

View License
Show simple item record


Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.

The metadata of the records in the Repository are available under the CC0 public domain dedication: No Rights Reserved https://creativecommons.org/publicdomain/zero/1.0/

If you believe that any material held in STORRE infringes copyright, please contact library@stir.ac.uk providing details and we will remove the Work from public display in STORRE and investigate your claim.