Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/34716
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dc.contributor.authorJacobs, Paulaen_UK
dc.contributor.authorWatchman, Karenen_UK
dc.contributor.authorWilkinson, Heatheren_UK
dc.contributor.authorHoyle, Louiseen_UK
dc.contributor.authorMcGenily, Lauraen_UK
dc.date.accessioned2023-01-24T11:25:17Z-
dc.date.available2023-01-24T11:25:17Z-
dc.date.issued2022-12-23en_UK
dc.identifier.urihttp://hdl.handle.net/1893/34716-
dc.description.abstractBackground Dementia disproportionately affects people with intellectual disability. Most qualitative studies explore their experiences by utilising proxy-reports. A smaller number of studies illustrate the possibility of exploring perspectives directly from people with intellectual disability and dementia. Method This systematic review synthesised findings from existing studies (n = 8) that involve people with intellectual disability and dementia as participants to understand their experiences of dementia. Searches were conducted using CINAHL, PsychInfo and Social Services Abstracts. Results Findings include descriptions of changes in individual functioning, a narrowing of social worlds and of how people made sense of the changes despite often having no knowledge of their dementia diagnosis. Additionally, discussion focuses on how people's experiences are shaped by their environments. Conclusion The review recognises the complexities of speaking to people with intellectual disability about dementia, challenges views that people with intellectual and dementia cannot be involved in research and makes recommendations to support inclusion in future studies.en_UK
dc.language.isoenen_UK
dc.publisherWileyen_UK
dc.relationJacobs P, Watchman K, Wilkinson H, Hoyle L & McGenily L (2022) Experiences of people with intellectual disability and dementia: A systematic review. <i>Journal of Applied Research in Intellectual Disabilities</i>. https://doi.org/10.1111/jar.13063en_UK
dc.rights© 2022 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.en_UK
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en_UK
dc.subjectdementiaen_UK
dc.subjectintellectual disabilityen_UK
dc.subjectlearning disabilityen_UK
dc.subjectqualitativeen_UK
dc.subjectsystematic reviewen_UK
dc.titleExperiences of people with intellectual disability and dementia: A systematic reviewen_UK
dc.typeJournal Articleen_UK
dc.identifier.doi10.1111/jar.13063en_UK
dc.identifier.pmid36562340en_UK
dc.citation.jtitleJournal of Applied Research in Intellectual Disabilitiesen_UK
dc.citation.issn1468-3148en_UK
dc.citation.issn1360-2322en_UK
dc.citation.peerreviewedRefereeden_UK
dc.type.statusVoR - Version of Recorden_UK
dc.contributor.funderThe Dunhill Medical Trusten_UK
dc.author.emailkaren.watchman@stir.ac.uken_UK
dc.citation.date23/12/2022en_UK
dc.description.notesOutput Status: Forthcoming/Available Onlineen_UK
dc.contributor.affiliationHealth Sciences Stirlingen_UK
dc.contributor.affiliationHealth Sciences Stirlingen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.contributor.affiliationHealth Sciences Stirlingen_UK
dc.contributor.affiliationNHS Forth Valleyen_UK
dc.identifier.isiWOS:000903030900001en_UK
dc.identifier.scopusid2-s2.0-85145030517en_UK
dc.identifier.wtid1868409en_UK
dc.contributor.orcid0000-0001-5593-5899en_UK
dc.contributor.orcid0000-0003-0000-3589en_UK
dc.contributor.orcid0000-0003-0782-9746en_UK
dc.contributor.orcid0000-0001-9900-552Xen_UK
dc.date.accepted2022-11-24en_UK
dcterms.dateAccepted2022-11-24en_UK
dc.date.filedepositdate2022-12-27en_UK
dc.relation.funderprojectPerspectives of older couples with a learning disability when one partner has dementia: identifying support needs of carer dyads.en_UK
dc.relation.funderrefRPGF2006\235en_UK
rioxxterms.apcpaiden_UK
rioxxterms.typeJournal Article/Reviewen_UK
rioxxterms.versionVoRen_UK
local.rioxx.authorJacobs, Paula|0000-0001-5593-5899en_UK
local.rioxx.authorWatchman, Karen|0000-0003-0000-3589en_UK
local.rioxx.authorWilkinson, Heather|0000-0003-0782-9746en_UK
local.rioxx.authorHoyle, Louise|0000-0001-9900-552Xen_UK
local.rioxx.authorMcGenily, Laura|en_UK
local.rioxx.projectRPGF2006\235|The Dunhill Medical Trust|en_UK
local.rioxx.freetoreaddate2023-01-10en_UK
local.rioxx.licencehttp://creativecommons.org/licenses/by-nc-nd/4.0/|2023-01-10|en_UK
local.rioxx.filenameExperiences of people with intellectual disability and dementia A systematic review.pdfen_UK
local.rioxx.filecount1en_UK
local.rioxx.source1468-3148en_UK
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