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Appears in Collections:Faculty of Social Sciences Journal Articles
Peer Review Status: Refereed
Title: Investigating the lived experience of LGBT+ people with dementia and their care partners: a scoping review
Author(s): Smith, Louisa
Chesher, Isabelle
Fredriksen-Goldsen, Karen
Ward, Richard
Phillipson, Lyn
Newman, Christy E
Delhomme, Felix
Keywords: dementia
gender and sexuality diverse
scoping review
lived experience
care partners
Issue Date: 30-May-2022
Date Deposited: 21-Jun-2022
Citation: Smith L, Chesher I, Fredriksen-Goldsen K, Ward R, Phillipson L, Newman CE & Delhomme F (2022) Investigating the lived experience of LGBT+ people with dementia and their care partners: a scoping review. Ageing and Society.
Abstract: Dementia, a global health priority, poses a disproportionately high risk to lesbian, gay, bisexual and trans plus (LGBT+)/gender and sexuality diverse people. Despite this, little research has explored the lived experience of LGBT+ people with dementia or their care partners. This scoping review aims to understand what the literature reveals about their experiences, the ways in which their lives have been investigated, to inform future research, policy and practice. Using an established scoping review methodology, we identified seven papers that reported empirical research on the lived experience of LGBT+ people with dementia and their care partners. Only a single study reported on in two of the papers included people who were trans. This in itself reveals how rarely LGBT+ people are asked to speak about how dementia has shaped their lives in academic research. Our reflexive thematic analysis indicates that LGBT+ people with dementia and their care partners endure overlapping forms of disadvantage. This results in heightened experiences of fear and discrimination, lack of services and compounded social isolation. Importantly, while dementia was embodied as interference and loss by LGBT+ people, it was their gender and sexuality differences that provided solace, even in the face of disadvantage. Importantly, people's relationships with LGBT+ identities were framed as fundamental for safety, resilience and wellbeing, rather than a complicating or confounding factor in living with dementia.
DOI Link: 10.1017/s0144686x22000538
Rights: This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (, which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.
Notes: Output Status: Forthcoming/Available Online
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