Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/32546
Appears in Collections:Faculty of Social Sciences Journal Articles
Peer Review Status: Refereed
Title: Beyond the shrinking world: dementia, localisation and neighbourhood
Author(s): Ward, Richard
Rummer, Kirstein
Odzakovic, Elzana
Manji, Kainde
Kullberg, Agneta
Keady, John
Clark, Andrew
Campbell, Sarah
Keywords: care
community
dementia dementia-friendly
neighbourhood
environment
Issue Date: 22-Mar-2021
Date Deposited: 20-Apr-2021
Citation: Ward R, Rummer K, Odzakovic E, Manji K, Kullberg A, Keady J, Clark A & Campbell S (2021) Beyond the shrinking world: dementia, localisation and neighbourhood. Ageing and Society. https://doi.org/10.1017/s0144686x21000350
Abstract: ‘Dementia-friendly communities’ herald a shift toward the neighbourhood as a locus for the care and support of people with dementia, sparking growing interest in the geographies of dementia care and raising questions over the shifting spatial and social experience of the condition. Existing research claims that many people with dementia experience a ‘shrinking world’ whereby the boundaries to their social and physical worlds gradually constrict over time, leading to a loss of control and independence. This paper reports a five-year, international study that investigated the neighbourhood experience of people with dementia and those who care for and support them. We interrogate the notion of a shrinking world and in so doing highlight an absence of attention paid to the agency and actions of people with dementia themselves. The paper draws together a socio-relational and embodied-material approach to question the adequacy of the shrinking world concept as an explanatory framework and to challenge reliance within policy and practice upon notions of place as fixed or stable. We argue instead for the importance of foregrounding ‘lived place’ and attending to social practices and the networks in which such practices evolve. Our findings have implications for policy and practice, emphasising the need to bolster the agency of people living with dementia as a route to fostering accessible and inclusive neighbourhoods.
DOI Link: 10.1017/s0144686x21000350
Rights: This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Notes: Output Status: Forthcoming/Available Online
Licence URL(s): http://creativecommons.org/licenses/by/4.0/

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