Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/31513
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: A person-centred approach to implementation of psychosocial interventions with people who have an intellectual disability and dementia-A participatory action study
Author(s): Watchman, Karen
Mattheys, Kate
McKernon, Michael
Strachan, Heather
Andreis, Federico
Murdoch, Jan
Contact Email: karen.watchman@stir.ac.uk
Keywords: psychosocial
dementia
learning disability
intellectual disability
participatory action
intervention
Issue Date: 18-Aug-2020
Citation: Watchman K, Mattheys K, McKernon M, Strachan H, Andreis F & Murdoch J (2020) A person-centred approach to implementation of psychosocial interventions with people who have an intellectual disability and dementia-A participatory action study. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12795
Abstract: Background Numbers of people with an intellectual disability and dementia are increasing with a need to reduce associated stress or agitation. This study aimed to identify effectiveness of psychosocial interventions in social care settings and, uniquely, explore use of photovoice methodology to develop dialogue about dementia. Methods This mixed-method participatory action study used goal-setting theory with 16 participants with intellectual disability and dementia, and 22 social care staff across 11 sites. Five co-researchers with intellectual disability were part of an inclusive research team collecting data using existing and bespoke tools including photovoice. Analysis used descriptive and inferential statistics and framework analysis. Results 74% of individual goals met or exceeded expectations with reduction in some ‘as required’ medication. Qualitative findings include themes of enabling care and interventions as tools for practice. Photovoice provided insight into previously unreported fears about dementia. Conclusions Individualised psychosocial interventions have potential to reduce distress or agitation.
DOI Link: 10.1111/jar.12795
Rights: © 2020 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial‐NoDerivs License (https://creativecommons.org/licenses/by-nc-nd/4.0/), which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
Notes: Output Status: Forthcoming/Available Online
Licence URL(s): http://creativecommons.org/licenses/by-nc-nd/4.0/

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