Please use this identifier to cite or link to this item:
Full metadata record
DC FieldValueLanguage
dc.contributor.authorJepson, Ruth-
dc.contributor.authorHewison, Jenny-
dc.contributor.authorThompson, Andrew-
dc.contributor.authorWeller, David-
dc.description.abstractThe principle of informed choice has been recently incorporated into cancer screening policy. However, there is limited empirical or theoretical work on informed choice in this particular context. The main aim of the study reported here was to explore the information needs of people invited for screening, and to gain insights into the relationship between the information they wanted and the choices they made. A qualitative study (nine focus groups and 15 individual interviews) was undertaken with people who had contrasting experiences (and outcomes) of either breast, cervical, or colorectal cancer screening at two locations in Scotland, UK. Findings suggest that lay people define and conceptualise informed choice differently from policy makers. The study also found that information about the disease was as important to people as information on the risks and limitations of screening. However, information may have little part to play in the choices people make. Rather, it may have more impact on outcomes such as satisfaction and anxiety. An explicit policy aim in promoting informed choice is to enhance patient autonomy and to prevent people from being deceived or coerced. However, this research shows that the provision of evidence-based information alone does not necessarily mean that an informed choice is made. People may not read, want, or understand the information, and, additionally, they may not be able to carry out their intended choice. There may be personal barriers, such as physical or mental health problems and language, or organisational barriers, such as the availability of the service/intervention and access. Therefore, the term ‘informed choice’ might not be useful in this context.en_UK
dc.relationJepson R, Hewison J, Thompson A & Weller D (2007) Patient perspectives on information and choice in cancer screening: A qualitative study in the UK, Social Science and Medicine, 65 (5), pp. 890-899.-
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author; you can only request a copy if you wish to use this work for your own research or private study.-
dc.subjectInformed choiceen_UK
dc.subjectPatient perspectiveen_UK
dc.subjectCancer screeningen_UK
dc.subject.lcshMedical screening-
dc.subject.lcshCancer Diagnosis-
dc.subject.lcshCancer Nursing-
dc.titlePatient perspectives on information and choice in cancer screening: A qualitative study in the UKen_UK
dc.typeJournal Articleen_UK
dc.rights.embargoreasonThe publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.-
dc.citation.jtitleSocial Science and Medicine-
dc.type.statusPublisher version (final published refereed version)-
dc.contributor.affiliationHS Research - Stirling-
dc.contributor.affiliationUniversity of Leeds-
dc.contributor.affiliationUniversity of Edinburgh-
dc.contributor.affiliationUniversity of Edinburgh-
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

Files in This Item:
File Description SizeFormat 
Jepson - Patient perspectives on information and choice in cancer screening etc.pdf147.07 kBAdobe PDFUnder Permanent Embargo    Request a copy

This item is protected by original copyright

Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.

If you believe that any material held in STORRE infringes copyright, please contact providing details and we will remove the Work from public display in STORRE and investigate your claim.