Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/28988
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dc.contributor.authorAbhyankar, Purvaen_UK
dc.contributor.authorUny, Isabelleen_UK
dc.contributor.authorSemple, Karenen_UK
dc.contributor.authorWane, Sarahen_UK
dc.contributor.authorHagen, Suzanneen_UK
dc.contributor.authorWilkinson, Joyceen_UK
dc.contributor.authorGuerrero, Karenen_UK
dc.contributor.authorTincello, Douglasen_UK
dc.contributor.authorDuncan, Edwarden_UK
dc.contributor.authorCalveley, Eileenen_UK
dc.contributor.authorElders, Andrewen_UK
dc.contributor.authorMcClurg, Doreenen_UK
dc.contributor.authorMaxwell, Margareten_UK
dc.date.accessioned2019-03-19T01:08:00Z-
dc.date.available2019-03-19T01:08:00Z-
dc.date.issued2019-03-15en_UK
dc.identifier.other45en_UK
dc.identifier.urihttp://hdl.handle.net/1893/28988-
dc.description.abstractBackground Pelvic organ prolapse is a common urogenital condition affecting 41–50% of women over the age of 40. To achieve early diagnosis and appropriate treatment, it is important that care is sensitive to and meets women’s needs, throughout their patient journey. This study explored women’s experiences of seeking diagnosis and treatment for prolapse and their needs and priorities for improving person-centred care. Methods Twenty-two women receiving prolapse care through urogynaecology services across three purposefully selected NHS UK sites took part in three focus groups and four telephone interviews. A topic guide facilitated discussions about women’s experiences of prolapse, diagnosis, treatment, follow-up, interactions with healthcare professionals, overall service delivery, and ideals for future services to meet their needs. Data were analysed thematically. Results Three themes emerged relating to women’s experiences of a) Evaluating what is normal b) Hobson’s choice of treatment decisions, and c) The trial and error of treatment and technique. Women often delayed seeking help for their symptoms due to lack of awareness, embarrassment and stigma. When presented to GPs, their symptoms were often dismissed and unaddressed until they became more severe. Women reported receiving little or no choice in treatment decisions. Choices were often influenced by health professionals’ preferences which were subtly reflected through the framing of the offer. Women’s embodied knowledge of their condition and treatment was largely unheeded, resulting in decisions that were inconsistent with women’s preferences and needs. Physiotherapy based interventions were reported as helping women regain control over their symptoms and life. A need for greater awareness of prolapse and physiotherapy interventions among women, GPs and consultants was identified alongside greater focus on prevention, early diagnosis and regular follow-up. Greater choice and involvement in treatment decision making was desired. Conclusions As prolapse treatment options expand to include more conservative choices, greater awareness and education is needed among women and professionals about these as a first line treatment and preventive measure, alongside a multi-professional team approach to treatment decision making. Women presenting with prolapse symptoms need to be listened to by the health care team, offered better information about treatment choices, and supported to make a decision that is right for them.en_UK
dc.language.isoenen_UK
dc.publisherSpringer Natureen_UK
dc.relationAbhyankar P, Uny I, Semple K, Wane S, Hagen S, Wilkinson J, Guerrero K, Tincello D, Duncan E, Calveley E, Elders A, McClurg D & Maxwell M (2019) Women's experiences of receiving care for pelvic organ prolapse: a qualitative study. BMC Women's Health, 19, Art. No.: 45. https://doi.org/10.1186/s12905-019-0741-2en_UK
dc.rights© The Author(s). 2019 This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.en_UK
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en_UK
dc.subjectObstetrics and Gynaecologyen_UK
dc.subjectReproductive Medicineen_UK
dc.subjectGeneral Medicineen_UK
dc.titleWomen's experiences of receiving care for pelvic organ prolapse: a qualitative studyen_UK
dc.typeJournal Articleen_UK
dc.identifier.doi10.1186/s12905-019-0741-2en_UK
dc.identifier.pmid30876415en_UK
dc.citation.jtitleBMC Women's Healthen_UK
dc.citation.issn1472-6874en_UK
dc.citation.volume19en_UK
dc.citation.publicationstatusPublisheden_UK
dc.citation.peerreviewedRefereeden_UK
dc.type.statusVoR - Version of Recorden_UK
dc.contributor.funderNational Institute for Health Researchen_UK
dc.citation.date15/03/2019en_UK
dc.contributor.affiliationHealth Sciences Stirlingen_UK
dc.contributor.affiliationInstitute for Social Marketingen_UK
dc.contributor.affiliationNMAHPen_UK
dc.contributor.affiliationNMAHPen_UK
dc.contributor.affiliationGlasgow Caledonian Universityen_UK
dc.contributor.affiliationHealth Sciences Stirlingen_UK
dc.contributor.affiliationNHS Greater Glasgow & Clydeen_UK
dc.contributor.affiliationUniversity of Leicesteren_UK
dc.contributor.affiliationNMAHPen_UK
dc.contributor.affiliationNMAHPen_UK
dc.contributor.affiliationGlasgow Caledonian Universityen_UK
dc.contributor.affiliationGlasgow Caledonian Universityen_UK
dc.contributor.affiliationInstitute for Social Marketingen_UK
dc.identifier.isiWOS:000461390900001en_UK
dc.identifier.scopusid2-s2.0-85062999428en_UK
dc.identifier.wtid1249552en_UK
dc.contributor.orcid0000-0002-0779-6588en_UK
dc.contributor.orcid0000-0002-9548-5332en_UK
dc.contributor.orcid0000-0002-3400-905Xen_UK
dc.contributor.orcid0000-0001-8731-2338en_UK
dc.contributor.orcid0000-0003-3318-9500en_UK
dc.date.accepted2019-03-08en_UK
dcterms.dateAccepted2019-03-08en_UK
dc.date.filedepositdate2019-03-18en_UK
rioxxterms.apcpaiden_UK
rioxxterms.typeJournal Article/Reviewen_UK
rioxxterms.versionVoRen_UK
local.rioxx.authorAbhyankar, Purva|0000-0002-0779-6588en_UK
local.rioxx.authorUny, Isabelle|0000-0002-9548-5332en_UK
local.rioxx.authorSemple, Karen|en_UK
local.rioxx.authorWane, Sarah|en_UK
local.rioxx.authorHagen, Suzanne|en_UK
local.rioxx.authorWilkinson, Joyce|en_UK
local.rioxx.authorGuerrero, Karen|en_UK
local.rioxx.authorTincello, Douglas|en_UK
local.rioxx.authorDuncan, Edward|0000-0002-3400-905Xen_UK
local.rioxx.authorCalveley, Eileen|0000-0001-8731-2338en_UK
local.rioxx.authorElders, Andrew|en_UK
local.rioxx.authorMcClurg, Doreen|en_UK
local.rioxx.authorMaxwell, Margaret|0000-0003-3318-9500en_UK
local.rioxx.project14–04-02|National Institute for Health Research|http://dx.doi.org/10.13039/501100000272en_UK
local.rioxx.freetoreaddate2019-03-18en_UK
local.rioxx.licencehttp://creativecommons.org/licenses/by/4.0/|2019-03-18|en_UK
local.rioxx.filenameAbhyankar2019_Article_WomenSExperiencesOfReceivingCa.pdfen_UK
local.rioxx.filecount1en_UK
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