Developing an initial item bank for a new cardiac rehabilitation PROM

Abstract

Background: A Scotland-wide government scoping exercise identified the need for a new patient-reported outcome measure (PROM) suitable for the wide range of diagnostic groups now accessing cardiac rehabilitation (CR). Aim: This paper describes the initial steps underpinning development of the item bank for a first draft tool (PROM–CR1). Methods: A literature review of existing tools was undertaken to guide a qualitative data collection methodology involving 19 CR staff and 22 service users. Results: Four conceptual ideas for health/quality of life were identified from the literature review: general health; physical; social; and psychological. Three key qualitative themes, largely reflective of literature review findings, were identified: expectations and entitlement; adjustment and acceptance; and control and choice. Future directions: These data will be combined to form PROM-CR1’s initial item bank, which will be piloted with staff and service users and refined to generate a finalised tool (PROM–CR) for use in clinical practice.