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dc.contributor.authorJohnston, Nikkien_UK
dc.contributor.authorLovell, Clareen_UK
dc.contributor.authorLiu, Wai-Manen_UK
dc.contributor.authorChapman, Michaelen_UK
dc.contributor.authorForbat, Lizen_UK
dc.description.abstractBackground Improving access to palliative care for older adults living in residential care is recognised internationally as a pressing clinical need. The integration of specialist palliative care in residential care for older adults is not yet standard practice. Objective This study aimed to understand the experience and impact of integrating a specialist palliative care model on residents, relatives and staff. Methods Focus groups were held with staff (n=40) and relatives (n=17). Thematic analysis was applied to the data. Results Three major themes were identified. The intervention led to (1) normalising death and dying in these settings, (2) timely access to a palliative care specialist who was able to prescribe anticipatory medications aiding symptom management and unnecessary hospitalisations and (3) better decision-making and planned care for residents, which meant that staff and relatives were better informed about, and prepared for, the resident's likely trajectory. Conclusions The intervention normalised death and dying and also underlined the important role that specialists play in providing staff education, timely access to medicines and advance care planning. The findings from our study, and the growing wealth of evidence integrating specialist palliative care in residential care for older adults, indicate a number of priorities for care providers, academics and policymakers. Further work on determining the role of primary and specialist palliative care services in residential care settings is needed to inform service delivery models.en_UK
dc.relationJohnston N, Lovell C, Liu W, Chapman M & Forbat L (2019) Normalising and planning for death in residential care: findings from a qualitative focus group study of a specialist palliative care intervention. BMJ Supportive and Palliative Care, 9 (1) p. 2016, Art. No.: e12.
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.en_UK
dc.subjectHospital careen_UK
dc.subjectNurse Practitioneren_UK
dc.subjectNursing Home careen_UK
dc.subjectanticipatory care planen_UK
dc.subjectresidential careen_UK
dc.titleNormalising and planning for death in residential care: findings from a qualitative focus group study of a specialist palliative care interventionen_UK
dc.typeJournal Articleen_UK
dc.rights.embargoreason[BMJSPC_2016 normalising death.pdf] The publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.en_UK
dc.citation.jtitleBMJ Supportive and Palliative Careen_UK
dc.type.statusVoR - Version of Recorden_UK
dc.contributor.funderAA Enviroen_UK
dc.contributor.affiliationCalvary Health Care ACTen_UK
dc.contributor.affiliationCalvary Health Care ACTen_UK
dc.contributor.affiliationAustralian National Universityen_UK
dc.contributor.affiliationCalvary Health Care ACTen_UK
dc.contributor.affiliationAustralian Catholic Universityen_UK
Appears in Collections:Faculty of Social Sciences Journal Articles

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