Please use this identifier to cite or link to this item:
Appears in Collections:Faculty of Social Sciences Journal Articles
Peer Review Status: Refereed
Title: Exploring Yamatji perceptions and use of palliative care: an ethnographic study
Author(s): Dembinsky, Melanie
Contact Email:
Keywords: Palliative care
Breast cancer
Aboriginal Australia
'Good' death
Cultural security
Issue Date: 2014
Citation: Dembinsky M (2014) Exploring Yamatji perceptions and use of palliative care: an ethnographic study, International Journal of Palliative Nursing, 20 (8), pp. 387-393.
Abstract: Background:  The Yamatji people comprise several Aboriginal groups living in the Midwest region of Western Australia. Palliative care remains underutilised among Aboriginal groups, but little is known about Yamatji people’s thoughts about and experiences of accessing services.  Aim:  As part of a broader study focusing on Yamatji’s lived experiences of breast cancer, this study analysed their perceptions and use of palliative care services.  Methods:  The study used grounded theory and 28 in-depth interviews with Aboriginal and non-Aboriginal health-care providers as well as Yamatji patients, carers, and families.  Results:  Palliative care services are underutilised by Yamatji breast cancer patients. The reasons for this include misperceptions about what palliative care entails, cultural and structural barriers to adequate service provision, and the inflexibility of institutionalised death.  Conclusions:  Efforts to raise awareness among Yamatji that palliative care is broader than end-of-life care would be a step in the right direction, but would not be sufficient to significantly increase uptake among Yamatji if culturally specific perceptions of death and dying are not included in the dialogue.
DOI Link:
Rights: The publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.

Files in This Item:
File Description SizeFormat 
ijpn.2014.20.8.387.pdf681.73 kBAdobe PDFUnder Permanent Embargo    Request a copy

Note: If any of the files in this item are currently embargoed, you can request a copy directly from the author by clicking the padlock icon above. However, this facility is dependent on the depositor still being contactable at their original email address.

This item is protected by original copyright

Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.

If you believe that any material held in STORRE infringes copyright, please contact providing details and we will remove the Work from public display in STORRE and investigate your claim.