Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/26980
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dc.contributor.authorTaylor, Anne-
dc.contributor.authorWells, Mary-
dc.contributor.authorHubbard, Gill-
dc.contributor.authorWorth, A-
dc.date.accessioned2018-04-13T22:36:59Z-
dc.date.issued2016-08-
dc.identifier.urihttp://hdl.handle.net/1893/26980-
dc.description.abstractPurpose  Patients diagnosed with laryngeal cancer and their families face unique challenges. Providing information is an essential component of care. However little is known about the way in which they use information. This study aims to explore the different types of information used by laryngeal cancer patients and their carers from diagnosis into the follow up phase.  Method  The study adopted an interpretive longitudinal design using qualitative interviews at two specific time points. Twenty laryngeal cancer patients and 17 carers were interviewed. Data were analysed using Framework Analysis.  Result  Two main categories of information: professional and experiential, were found to be used, drawn from a range of sources. The information received at diagnosis appeared to contribute to an 'illusion of certainty’ that life would return to normal at the end of treatment. However, as patients progressed into follow-up, many were propelled into a 'reality of uncertainty' due to the “disconnect” between the expectations both patient and carer developed from information received over the cancer trajectory.  Conclusion  The findings from this longitudinal study suggest that people affected by laryngeal cancer use two broad categories of information derived from a range of different sources and influenced by their own experiences. Health professionals need to situate information in the context of the individual's understanding and prior knowledge of health and illness to help generate more realistic expectations of treatment outcomes. The level of uncertainty experienced by both patients and their carers after treatment suggests a clear need for continued supportive care.en_UK
dc.language.isoen-
dc.publisherElsevier-
dc.relationTaylor A, Wells M, Hubbard G & Worth A (2016) From an illusion of certainty into a reality of uncertainty: A longitudinal qualitative study of how people affected by laryngeal cancer use information over time, European Journal of Oncology Nursing, 23, pp. 15-23.-
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.-
dc.subjectLaryngeal canceren_UK
dc.subjectInformationen_UK
dc.subjectPatient and carer experienceen_UK
dc.subjectQualitative methodsen_UK
dc.subjectUncertaintyen_UK
dc.titleFrom an illusion of certainty into a reality of uncertainty: A longitudinal qualitative study of how people affected by laryngeal cancer use information over timeen_UK
dc.typeJournal Articleen_UK
dc.rights.embargodate2999-12-31T00:00:00Z-
dc.rights.embargoreasonThe publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.-
dc.identifier.doihttp://dx.doi.org/10.1016/j.ejon.2016.03.006-
dc.identifier.pmid27456371-
dc.citation.jtitleEuropean Journal of Oncology Nursing-
dc.citation.issn1462-3889-
dc.citation.volume23-
dc.citation.spage15-
dc.citation.epage23-
dc.citation.publicationstatusPublished-
dc.citation.peerreviewedRefereed-
dc.type.statusPublisher version (final published refereed version)-
dc.author.emaila.d.taylor@stir.ac.uk-
dc.citation.date04/05/2016-
dc.contributor.affiliationHealth Sciences-
dc.contributor.affiliationNMAHP Research-
dc.contributor.affiliationHS Research - Highland-
dc.contributor.affiliationWestern General Hospital-
dc.rights.embargoterms2999-12-31-
dc.rights.embargoliftdate2999-12-31-
dc.identifier.isi000381536900003-
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

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