|dc.description.abstract||Purpose Patients diagnosed with laryngeal cancer and their families face unique challenges. Providing information is an essential component of care. However little is known about the way in which they use information. This study aims to explore the different types of information used by laryngeal cancer patients and their carers from diagnosis into the follow up phase.
The study adopted an interpretive longitudinal design using qualitative interviews at two specific time points. Twenty laryngeal cancer patients and 17 carers were interviewed. Data were analysed using Framework Analysis.
Two main categories of information: professional and experiential, were found to be used, drawn from a range of sources. The information received at diagnosis appeared to contribute to an 'illusion of certainty’ that life would return to normal at the end of treatment. However, as patients progressed into follow-up, many were propelled into a 'reality of uncertainty' due to the “disconnect” between the expectations both patient and carer developed from information received over the cancer trajectory.
The findings from this longitudinal study suggest that people affected by laryngeal cancer use two broad categories of information derived from a range of different sources and influenced by their own experiences. Health professionals need to situate information in the context of the individual's understanding and prior knowledge of health and illness to help generate more realistic expectations of treatment outcomes. The level of uncertainty experienced by both patients and their carers after treatment suggests a clear need for continued supportive care.||en_UK|
|dc.relation||Taylor A, Wells M, Hubbard G & Worth A (2016) From an illusion of certainty into a reality of uncertainty: A longitudinal qualitative study of how people affected by laryngeal cancer use information over time, European Journal of Oncology Nursing, 23, pp. 15-23.||-|
|dc.rights||The publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.||-|
|dc.subject||Patient and carer experience||en_UK|
|dc.title||From an illusion of certainty into a reality of uncertainty: A longitudinal qualitative study of how people affected by laryngeal cancer use information over time||en_UK|
|dc.rights.embargoreason||The publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.||-|
|dc.citation.jtitle||European Journal of Oncology Nursing||-|
|dc.type.status||Publisher version (final published refereed version)||-|
|dc.contributor.affiliation||HS Research - Highland||-|
|dc.contributor.affiliation||Western General Hospital||-|
|Appears in Collections:||Faculty of Health Sciences and Sport Journal Articles|