Please use this identifier to cite or link to this item:
Appears in Collections:Faculty of Social Sciences Journal Articles
Peer Review Status: Refereed
Title: 'I don't know if you want to know this': Carers' understandings of intimacy in long-term relationships when one partner has dementia
Author(s): Youell, Jane
Callaghan, Jane
Buchanan, Kevin
Contact Email:
Keywords: dementia
older adults
Issue Date: May-2016
Citation: Youell J, Callaghan J & Buchanan K (2016) 'I don't know if you want to know this': Carers' understandings of intimacy in long-term relationships when one partner has dementia, Ageing and Society, 36 (5), pp. 946-967.
Abstract: This article explores experiences of relational intimacy (including sexual intimacy) in long- term relationships when one partner has dementia. An emerging body of research focuses on living with dementia, but work on relationships between people with dementia and their family and loved ones tends to focus on understanding the experience of caring and on constructs like ‘care burden’ (Etters, Goodall and Harrison 2008: 423). Research concerned with the lived experience of relationships themselves is less frequent, and very little published work focuses experiences of sex and intimacy. This qualitative study explores how six participants experience their intimate relationships with their partners with dementia. Semi-structured interviews provided a rich source of data which were analysed using interpretive phenomenological analysis. Three master themes emerged from our analysis: a) everydayness, b) absent presence, and c) I don’t know if you want to know this. Participants explored how living with dementia constructed specific, everyday relational challenges, and disrupted everyday intimacies. Intimacy, including sexual intimacy, remains an important element of older couple relationships. Relational experiences present specific and difficult to articulate experiences for the partners of people living with dementia – particularly experiences related to sex and sexuality. Representations of older adults (particularly older adults with a long term illness) as relatively asexual beings can make elements of these relational challenges particularly difficult to express.
DOI Link:
Rights: This article has been accepted for publication in Ageing and Society. This version is free to view and download for private research and study only. Not for re-distribution, re-sale or use in derivative works. © Cambridge University Press 2015

Files in This Item:
File Description SizeFormat 
Youell20157239.pdf309.8 kBAdobe PDFView/Open

This item is protected by original copyright

Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.

If you believe that any material held in STORRE infringes copyright, please contact providing details and we will remove the Work from public display in STORRE and investigate your claim.