Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/25534
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dc.contributor.authorPoyner, Christopheren_UK
dc.contributor.authorInnes, Antheaen_UK
dc.contributor.authorDekker, Francescaen_UK
dc.date.accessioned2017-11-10T00:19:26Z-
dc.date.available2017-11-10T00:19:26Zen_UK
dc.date.issued2017en_UK
dc.identifier.urihttp://hdl.handle.net/1893/25534-
dc.description.abstractPurpose  The perspectives of people with dementia and their care partners regarding “extra care” housing are currently unknown. The purpose of this paper is to report findings of a consultation study exploring the perceived barriers and facilitators of a relocation to extra care housing, from the perspective of people living with dementia, and their care partners.  Design/methodology/approach  Fieldwork consisted of paired or 1-1 interviews and small focus groups with potential users of an alternative model of extra care support for people living with dementia in the South of England. The consultation took place between June and August 2013. The interviews and focus groups were audio recorded, transcribed verbatim. The transcripts were analysed thematically.  Findings  Benefits of extra care were identified as the opportunity for couples to remain living together for longer, creating a supportive, dementia-friendly community, and a reduction in the strain experienced by the care partners. Barriers centred on a sense of loss, stress and uncertainty. Living and caring at home was perceived as preferable to shared care.  Research limitations/implications  The findings presented here have limited generalisability for two reasons. First, the shared care approach consulted on was very specific. Second, the participants form a purposive sample and as such are not representative of a wider population. Despite best intentions, the voice of people with dementia, are underreported in this consultation. Only one person with early on-set dementia was interviewed and the remaining two people with dementia were interviewed alongside their care partner.  Practical implications  The findings cast doubt on the viability of extra care facilities, designed for couples living with dementia, if extra care continues to be conceptualised and marketed as a preventative lifestyle choice. The findings indicate the value of consulting with people with dementia, and their care partners, when designing new forms of housing with care specifically for people living with dementia.  Social implications  The findings of this consultation exemplify the wish of couples living with dementia to remain together, in what they perceive to be “home”, for as long as possible. Couples living with dementia are therefore unlikely to wish to move into an extra care facility as a lifestyle choice option, early into their journey with dementia. This raises questions about the suitability of extra care, as a form of housing with care, for couples living with dementia.  Originality/value  This paper contributes to the body of literature, exploring the feasibility of new and innovative alternative care and housing options, for people with dementia. This paper is one of the first to explore extra care as a housing and social care option for couples with dementia.en_UK
dc.language.isoenen_UK
dc.publisherEmeralden_UK
dc.relationPoyner C, Innes A & Dekker F (2017) Extra care: Viable for couples living with dementia?. Housing, Care and Support, 20 (1), pp. 8-18. https://doi.org/10.1108/HCS-12-2016-0018en_UK
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.en_UK
dc.subjectConsultationen_UK
dc.subjectDementia careen_UK
dc.subjectHousing with careen_UK
dc.subjectCarer perspectivesen_UK
dc.subjectExtra careen_UK
dc.subjectShared careen_UK
dc.titleExtra care: Viable for couples living with dementia?en_UK
dc.typeJournal Articleen_UK
dc.rights.embargodate2999-12-21en_UK
dc.rights.embargoreason[HCS-12-2016-0018.pdf] The publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.en_UK
dc.identifier.doi10.1108/HCS-12-2016-0018en_UK
dc.citation.jtitleHousing, Care and Supporten_UK
dc.citation.issn2042-8375en_UK
dc.citation.issn1460-8790en_UK
dc.citation.volume20en_UK
dc.citation.issue1en_UK
dc.citation.spage8en_UK
dc.citation.epage18en_UK
dc.citation.publicationstatusPublisheden_UK
dc.citation.peerreviewedRefereeden_UK
dc.type.statusVoR - Version of Recorden_UK
dc.author.emailanthea.innes1@stir.ac.uken_UK
dc.citation.date20/03/2017en_UK
dc.contributor.affiliationUniversity of Stirlingen_UK
dc.contributor.affiliationDementia and Ageingen_UK
dc.contributor.affiliationBrendoncare Foundationen_UK
dc.identifier.isiWOS:000407850900002en_UK
dc.identifier.scopusid2-s2.0-85019072403en_UK
dc.identifier.wtid526008en_UK
dc.contributor.orcid0000-0002-5591-4083en_UK
dc.date.accepted2017-03-14en_UK
dc.description.refREF Compliant by Deposit in other institution's Repository: University of Salford on 17/03/2017: http://usir.salford.ac.uk/id/eprint/41596en_UK
dc.date.filedepositdate2017-06-26en_UK
Appears in Collections:Faculty of Social Sciences Journal Articles

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