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Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: International Summit Consensus Statement: Intellectual Disability Inclusion in National Dementia Plans
Author(s): Watchman, Karen
Janicki, Matthew P
Splaine, Michael
Larsen, Frode K
Gomiero, Tiziano
Lucchino, Ronald
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Keywords: dementia
Down syndrome
intellectual disability
national plans
Issue Date: Jun-2017
Date Deposited: 16-Mar-2017
Citation: Watchman K, Janicki MP, Splaine M, Larsen FK, Gomiero T & Lucchino R (2017) International Summit Consensus Statement: Intellectual Disability Inclusion in National Dementia Plans. American Journal of Alzheimers Disease and Other Dementias, 32 (4), pp. 230-237.
Abstract: The WHO has called for the development and adoption of national plans or strategies to guide public policy and set goals for services, supports, and research related to dementia. It called for distinct populations to be included within national plans, including adults with intellectual disability (ID). Inclusion of this group is important as having Down syndrome is a significant risk factor for early-onset dementia. Adults with other ID may have specific needs for dementia-related care that, if unmet, can lead to diminished quality of old age. An International Summit on Intellectual Disability and Dementia in Scotland reviewed the inclusion of ID in national plans recommending that inclusion goes beyond just description and relevance of ID. Reviews of national plans and reports on dementia show minimal consideration of ID and the challenges that their carers face. The Summit recommended that persons with ID, as well as family carers, should be included in consultation processes and greater advocacy is required from national organisations on behalf of families, with need for an infrastructure in health and social care that supports quality care for dementia.
DOI Link: 10.1177/1533317517704082
Rights: Publisher policy allows this work to be made available in this repository on acceptance for publication. Accepted for publication American Journal of Alzheimer's Disease and Other Dementias by SAGE. The original publication will be available at:

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