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dc.contributor.authorSantesso, Nancyen_UK
dc.contributor.authorMorgano, Gian Paoloen_UK
dc.contributor.authorJack, Susan Aen_UK
dc.contributor.authorHaynes, R Brianen_UK
dc.contributor.authorHill, Sophieen_UK
dc.contributor.authorTreweek, Shaunen_UK
dc.contributor.authorSchunemann, Holgeren_UK
dc.contributor.authorCallaghan, Margareten_UK
dc.contributor.authorGraham, Karenen_UK
dc.contributor.authorHarbour, Robinen_UK
dc.contributor.authorKunnamo, Ilkkaen_UK
dc.contributor.authorLiira, Helenaen_UK
dc.contributor.authorLoudon, Kirstyen_UK
dc.contributor.authorMcFarlane, Emmaen_UK
dc.contributor.authorRitchie, Karenen_UK
dc.contributor.authorService, Duncanen_UK
dc.contributor.authorThornton, Judithen_UK
dc.description.abstractBackground. Clinical practice guidelines (CPGs) are typically written for health care professionals but are meant to assist patients with health care decisions. A number of guideline producers have started to develop patient versions of CPGs to reach this audience. Objective. To describe the content and purpose of patient versions of CPGs and compare with patient and public views of CPGs. Design. A descriptive qualitative study with a directed content analysis of a sample of patient versions of CPGs published and freely available in English from 2012 to 2014. Results. We included 34 patient versions of CPGs from 17 guideline producers. Over half of the patient versions were in dedicated patient sections of national/professional agency websites. There was essentially no information about how to manage care in the health care system. The most common purpose was to equip people with information about disease, tests or treatments, and recommendations, but few provided quantitative data about benefits and harms of treatments. Information about beliefs, values and preferences, accessibility, costs, or feasibility of the interventions was rarely addressed. Few provided personal stories or scenarios to personalize the information. Three versions described the strength of the recommendation or the level of evidence. Limitations. Our search for key institutions that produce patient versions of guidelines was comprehensive, but we only included English and freely available versions. Future work will include other languages. Conclusions. This review describes the current landscape of patient versions of CPGs and suggests that these versions may not address the needs of their targeted audience. Research is needed about how to personalize information, provide information about factors contributing to the recommendations, and provide access.en_UK
dc.relationSantesso N, Morgano GP, Jack SA, Haynes RB, Hill S, Treweek S, Schunemann H, Callaghan M, Graham K, Harbour R, Kunnamo I, Liira H, Loudon K, McFarlane E, Ritchie K, Service D & Thornton J (2016) Dissemination of clinical practice guidelines: A content analysis of patient versions. Medical Decision Making, 36 (6), pp. 692-702.
dc.rightsPublisher policy allows this work to be made available in this repository. Published in Medical Decision Making by SAGE. The original publication is available at:
dc.subjectpatient decision makingen_UK
dc.subjectrisk communicationen_UK
dc.subjectrisk perceptionen_UK
dc.subjectclinical practice guidelinesen_UK
dc.subjectqualitative methodsen_UK
dc.titleDissemination of clinical practice guidelines: A content analysis of patient versionsen_UK
dc.typeJournal Articleen_UK
dc.citation.jtitleMedical Decision Makingen_UK
dc.type.statusAM - Accepted Manuscripten_UK
dc.contributor.affiliationMcMaster Universityen_UK
dc.contributor.affiliationItalian National Cancer Instituteen_UK
dc.contributor.affiliationMcMaster Universityen_UK
dc.contributor.affiliationMcMaster Universityen_UK
dc.contributor.affiliationLa Trobe Universityen_UK
dc.contributor.affiliationUniversity of Aberdeenen_UK
dc.contributor.affiliationMcMaster Universityen_UK
dc.contributor.affiliationHealthcare Improvement Scotlanden_UK
dc.contributor.affiliationHealthcare Improvement Scotlanden_UK
dc.contributor.affiliationHealthcare Improvement Scotlanden_UK
dc.contributor.affiliationDuodecim Medical Publications Ltden_UK
dc.contributor.affiliationHealthcare Improvement Scotlanden_UK
dc.contributor.affiliationHS - Management and Support - LEGACYen_UK
dc.contributor.affiliationNational Institute for Health and Care Excellence (NICE)en_UK
dc.contributor.affiliationNHS Quality Improvement Scotlanden_UK
dc.contributor.affiliationHealthcare Improvement Scotlanden_UK
dc.contributor.affiliationNational Institute for Health and Care Excellence (NICE)en_UK
rioxxterms.apcnot requireden_UK
rioxxterms.typeJournal Article/Reviewen_UK
local.rioxx.authorSantesso, Nancy|en_UK
local.rioxx.authorMorgano, Gian Paolo|en_UK
local.rioxx.authorJack, Susan A|en_UK
local.rioxx.authorHaynes, R Brian|en_UK
local.rioxx.authorHill, Sophie|en_UK
local.rioxx.authorTreweek, Shaun|en_UK
local.rioxx.authorSchunemann, Holger|en_UK
local.rioxx.authorCallaghan, Margaret|en_UK
local.rioxx.authorGraham, Karen|en_UK
local.rioxx.authorHarbour, Robin|en_UK
local.rioxx.authorKunnamo, Ilkka|en_UK
local.rioxx.authorLiira, Helena|en_UK
local.rioxx.authorLoudon, Kirsty|0000-0002-4449-6226en_UK
local.rioxx.authorMcFarlane, Emma|en_UK
local.rioxx.authorRitchie, Karen|en_UK
local.rioxx.authorService, Duncan|en_UK
local.rioxx.authorThornton, Judith|en_UK
local.rioxx.projectInternal Project|University of Stirling|
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

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