Please use this identifier to cite or link to this item:
Full metadata record
DC FieldValueLanguage
dc.contributor.authorLiira, Helena-
dc.contributor.authorSaarelma, Osmo-
dc.contributor.authorCallaghan, Margaret-
dc.contributor.authorHarbour, Robin-
dc.contributor.authorJousimaa, Jukkapekka -
dc.contributor.authorKunnamo, Ilkka-
dc.contributor.authorLoudon, Kirsty-
dc.contributor.authorMcFarlane, Emma-
dc.contributor.authorTreweek, Shaun-
dc.description.abstractBackground. Evidence-based clinical guidelines could support shared decision-making and help patients to participate actively in their care. However, it is not well known how patients view guidelines as a source of health information. This qualitative study aimed to assess what patients know about guidelines, and what they think of their presentation formats. Research question. What is the role of guidelines as health information for patients and how could the implementation of evidence-based information for patients be improved? Methods. A qualitative study with focus groups that were built around a semi-structured topic guide. Focus groups were audiotaped and transcribed and analysed using a phenomenographic approach. Results. Five focus groups were carried out in 2012 with a total of 23 participants. Patients searched for health information from the Internet or consulted health professionals or their personal networks. The concepts of guidelines included instructions or standards for health professionals, information given by a health professional to the patient, and material to protect and promote the interests of patients. Some patients did not have a concept for guidelines. Patients felt that health information was abundant and its quality sometimes difficult to assess. They respected conciseness, clarity, clear structure, and specialists or well-known organizations as authors of health information. Patients would like health professionals to deliver and clarify written materials to them or point out to them the relevant Internet sites. Conclusions. The concept of guidelines was not well known among our interviewees; however, they expressed an interest in having more communication on health information, both written information and clarifications with their health professionals.en_UK
dc.publisherTaylor & Francis Open-
dc.relationLiira H, Saarelma O, Callaghan M, Harbour R, Jousimaa J, Kunnamo I, Loudon K, McFarlane E & Treweek S (2015) Patients, health information, and guidelines: A focus-group study, Scandinavian Journal of Primary Health Care, 33 (3), pp. 212-219.-
dc.rightsAvailable under the Creative Commons Attribution License. License text at:
dc.subjectClinical guidelinesen_UK
dc.subjectfocus groupsen_UK
dc.subjectgeneral practiceen_UK
dc.subjectpatient informationen_UK
dc.subjectpatient versionsen_UK
dc.titlePatients, health information, and guidelines: A focus-group studyen_UK
dc.typeJournal Articleen_UK
dc.citation.jtitleScandinavian Journal of Primary Health Care-
dc.type.statusPublisher version (final published refereed version)-
dc.contributor.affiliationUniversity of Helsinki-
dc.contributor.affiliationDuodecim Medical Publications Ltd-
dc.contributor.affiliationHealthcare Improvement Scotland-
dc.contributor.affiliationHealthcare Improvement Scotland-
dc.contributor.affiliationDuodecim Medical Publications Ltd-
dc.contributor.affiliationDuodecim Medical Publications Ltd-
dc.contributor.affiliationHS - Management and Support-
dc.contributor.affiliationNational Institute for Health and Care Excellence (NICE)-
dc.contributor.affiliationUniversity of Aberdeen-
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

Files in This Item:
File Description SizeFormat 
Liira focus group study 2015.pdf1.44 MBAdobe PDFView/Open

This item is protected by original copyright

Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.

If you believe that any material held in STORRE infringes copyright, please contact providing details and we will remove the Work from public display in STORRE and investigate your claim.