Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/15305
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dc.contributor.authorWilliams, Brian-
dc.contributor.authorCorlett, Joanne-
dc.contributor.authorDowell, Jon-
dc.contributor.authorCoyle, Joanne-
dc.contributor.authorMukhopadhyay, Somnath-
dc.date.accessioned2015-10-22T23:43:36Z-
dc.date.issued2009-10-
dc.identifier.urihttp://hdl.handle.net/1893/15305-
dc.description.abstractThe relevance of biographical disruption and loss of self for children and young people is unclear, particularly in cases of congenital illness such as cystic fibrosis, where no prior period of wellness, stability, or perceived normality might exist. We explored the meaning, importance, and forms of maintenance of ideas of normality among 32 children and young people with cystic fibrosis. We examine the ways in which normalcy is produced, maintained, and threatened, and discuss the implications for the applicability and relevance of these traditional sociological concepts. Analysis of children's and young people's accounts resulted in a conceptualization of four forms of normalcy based on personal and social definitions and audiences. Biographical disruption appeared relevant but in a more nuanced form than its usual conceptualization when applied to adult populations. Maintaining normality within the family resulted in continual biographical revision in anticipation of future illness trajectory and life course.en_UK
dc.language.isoen-
dc.publisherSAGE-
dc.relationWilliams B, Corlett J, Dowell J, Coyle J & Mukhopadhyay S (2009) "I've never not had it so I don't really know what it's like not to": Nondifference and biographical disruption among children and young people with cystic fibrosis, Qualitative Health Research, 19 (10), pp. 1443-1455.-
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.-
dc.subjectadolescentsen_UK
dc.subjectchildrenen_UK
dc.subjectchronic illnessen_UK
dc.subjectcystic fibrosisen_UK
dc.subjectsociologyen_UK
dc.subject.lcshCystic fibrosis-
dc.title"I've never not had it so I don't really know what it's like not to": Nondifference and biographical disruption among children and young people with cystic fibrosisen_UK
dc.typeJournal Articleen_UK
dc.rights.embargodate2999-12-31T00:00:00Z-
dc.rights.embargoreasonThe publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.-
dc.identifier.doihttp://dx.doi.org/10.1177/1049732309348363-
dc.citation.jtitleQualitative Health Research-
dc.citation.issn1049-7323-
dc.citation.volume19-
dc.citation.issue10-
dc.citation.spage1443-
dc.citation.epage1455-
dc.citation.publicationstatusPublished-
dc.citation.peerreviewedRefereed-
dc.type.statusPublisher version (final published refereed version)-
dc.author.emailbrian.williams@stir.ac.uk-
dc.contributor.affiliationNMAHP Research-
dc.contributor.affiliationUniversity of St Andrews-
dc.contributor.affiliationUniversity of Dundee-
dc.contributor.affiliationNMAHP Research-
dc.contributor.affiliationUniversity of Southampton-
dc.rights.embargoterms2999-12-31-
dc.rights.embargoliftdate2999-12-31-
dc.identifier.isi000270463500007-
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

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