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dc.contributor.authorJohnston, Bridgeten_UK
dc.contributor.authorSmith, Lorraine Nen_UK
dc.description.abstractAim. This paper reports a study of the perceptions of patients and nurses of palliative care and, in particular, the concept of the expert palliative nurse. Background. Palliative care is a growing speciality and is practised globally. There is, however, limited information on patients’ views about palliative care. While the idea of expertise in nursing is not new, few studies have explored the concept of the expert nurse in palliative care. Some evidence exists on palliative nurses’ perceptions of their care, that it is supportive and involves maintaining therapeutic relationships with patients. Facing a terminal illness has been identified as a stressful and fearful experience that affects all aspects of life. It has also been revealed that dying patients may have unmet care needs, mainly in the areas of pain and symptom control, emotional support, and spending time alone. Methods. A phenomenological study was carried out, using in-depth interviews and thematic content analysis. A convenience sample of 22 Registered Nurses and 22 dying patients was interviewed in 1996–1997. Findings. Dying patients had a desire to maintain independence and remain in control. Palliative care nurses experienced both effective and ineffective interpersonal communication, the building of therapeutic relationships with dying patients and attempting to control patients’ pain and distressing symptoms. Patients and nurses agreed that the two most important characteristics of an expert palliative nurse were interpersonal skills and qualities such as kindness, warmth, compassion and genuineness. Conclusion. Although the study was conducted in the United Kingdom, the findings have relevance for palliative care practice globally in terms of dependence, issues of patient choice, nurses being interpersonally skilled and building therapeutic relationships with patients.en_UK
dc.publisherBlackwell Publishingen_UK
dc.relationJohnston B & Smith LN (2006) Nurses’ and patients’ perceptions of expert palliative nursing care. Journal of Advanced Nursing, 54 (6), pp. 700-709.
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author; you can only request a copy if you wish to use this work for your own research or private study.en_UK
dc.subjectdying patientsen_UK
dc.subjectempirical research reporten_UK
dc.subjectexpert nursingen_UK
dc.subjectPalliative careen_UK
dc.subjectTerminal careen_UK
dc.subjectNurse and patienten_UK
dc.titleNurses’ and patients’ perceptions of expert palliative nursing careen_UK
dc.typeJournal Articleen_UK
dc.rights.embargoreason[Johnston - Nurses' and patients' perceptions of expert palliative nursing care.pdf] We would like to delay access to this to article and request that the 'Request from author' option be added to this paper. The publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.en_UK
dc.citation.jtitleJournal of Advanced Nursingen_UK
dc.type.statusVoR - Version of Recorden_UK
dc.contributor.affiliationStrathcarron Hospiceen_UK
dc.contributor.affiliationUniversity of Glasgowen_UK
rioxxterms.typeJournal Article/Reviewen_UK
local.rioxx.authorJohnston, Bridget|en_UK
local.rioxx.authorSmith, Lorraine N|en_UK
local.rioxx.projectInternal Project|University of Stirling|
local.rioxx.filenameJohnston - Nurses' and patients' perceptions of expert palliative nursing care.pdfen_UK
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

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