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dc.contributor.authorForbat, Lizen_UK
dc.contributor.authorService, Kathryn Pekalaen_UK
dc.description.abstractThe complexity of the relationship between intellectual disability (ID) and dementia is increasingly acknowledged. In order to operationalize a route towards person-centred care, we introduce the hierarchy model (Pearce, 1999) as a tool to focus the attention of policy and practice on all aspects of caregiving. This tool, which is taken from the family therapy literature, enables practitioners to examine the broad systems that impact on the delivery and receipt of care. In this article, we focus on its utility in scrutinizing end-of-life and later stages of dementia by illustrating its use with three key areas in dementia care. These three areas provide some of the most challenging situations at the end stages, because of the possible treatment options, they are: nutrition, medical interventions, and the location of care provision. This model enables a focused approach to understanding how meaning is created within social interaction. The article draws out implications for practice and policy and has applications for practice internationally.en_UK
dc.relationForbat L & Service KP (2005) Who cares? Contextual layers in end-of-life care for people with intellectual disability and dementia. Dementia, 4 (3), pp. 413-431.
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author; you can only request a copy if you wish to use this work for your own research or private study.en_UK
dc.subjectcare relationshipsen_UK
dc.subjectservice provisionen_UK
dc.subjecttherapy modelen_UK
dc.subjectOlder people Mental healthen_UK
dc.subjectHome care services Researchen_UK
dc.subjectDementia Patients Careen_UK
dc.subjectDementia Patients Services foren_UK
dc.titleWho cares? Contextual layers in end-of-life care for people with intellectual disability and dementiaen_UK
dc.typeJournal Articleen_UK
dc.rights.embargoreason[Forbat - Who cares- Contextual layers in end-of-life care for people.pdf] We would like to delay access to this to article and request that the 'Request from author' option be added to this paper. The publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.en_UK
dc.type.statusVoR - Version of Recorden_UK
dc.contributor.affiliationHealth Sciences Research - Stirling - LEGACYen_UK
dc.contributor.affiliationMassachusetts Department of Mental Retardationen_UK
rioxxterms.typeJournal Article/Reviewen_UK
local.rioxx.authorForbat, Liz|0000-0002-7218-5775en_UK
local.rioxx.authorService, Kathryn Pekala|en_UK
local.rioxx.projectInternal Project|University of Stirling|
local.rioxx.filenameForbat - Who cares- Contextual layers in end-of-life care for people.pdfen_UK
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

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