|Appears in Collections:||Faculty of Health Sciences and Sport Journal Articles|
|Peer Review Status:||Refereed|
|Title:||People with aphasia: capacity to consent, research participation and intervention inequalities|
|Author(s):||Brady, Marion C|
|Citation:||Brady MC, Fredrick A & Williams B (2013) People with aphasia: capacity to consent, research participation and intervention inequalities, International Journal of Stroke, 8 (3), pp. 193-196.|
|Abstract:||Of 14 randomized controlled trials included in the recent Cochrane review of the evidence relating to information provision after stroke, only one included people with aphasia with the remainder either excluding this patient sub-group (10/14 trials) or failing to report any exclusion criteria. A third of people that experience a stroke will also experience aphasia, affecting their speaking, understanding, reading, and writing. The pervasive supposition that people with aphasia lack the capacity to make decisions for themselves is flawed and has the potential to lead to inequalities in care. We highlight the degree to which people with aphasia have been excluded from full participation in some areas of stroke research and the potential clinical consequences of their systematic exclusion. We emphasize the clinical and ethical need for the provision of more accessible research information and consent processes, illustrate the feasibility of adopting such an approach, and consider the broader benefits to stroke research of inclusive and accessible research approaches.|
|Rights:||The publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.|
|BradyFredrickWilliams_Opinion_2013.pdf||78.33 kB||Adobe PDF||Under Permanent Embargo Request a copy|
Note: If any of the files in this item are currently embargoed, you can request a copy directly from the author by clicking the padlock icon above. However, this facility is dependent on the depositor still being contactable at their original email address.
This item is protected by original copyright
Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.
If you believe that any material held in STORRE infringes copyright, please contact email@example.com providing details and we will remove the Work from public display in STORRE and investigate your claim.