Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/10766
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dc.contributor.authorFrance, Emmaen_UK
dc.contributor.authorHunt, Kateen_UK
dc.contributor.authorZiebland, Sue Ben_UK
dc.contributor.authorWyke, Sallyen_UK
dc.date.accessioned2018-03-30T00:12:36Z-
dc.date.available2018-03-30T00:12:36Zen_UK
dc.date.issued2013-01en_UK
dc.identifier.urihttp://hdl.handle.net/1893/10766-
dc.description.abstractObjective: to describe men's and women's experiences of deciding whether to tell people in their social network, including their children, about their pregnancy loss following a termination for fetal abnormality. Design: secondary analysis of qualitative narrative interview data informed by a critical realist approach. Setting: respondents were recruited throughout the United Kingdom and interviewed at home between 2004 and 2005. Participants: twenty-eight women and nine men who had ended a pregnancy diagnosed with a fetal abnormality and who talked about disclosing or not disclosing the termination to others. Findings: few respondents reported having any advice or information about whether or how to disclose their termination. None said they completely concealed their decision from adults in their social network; most said they disclosed selectively, telling close friends and family they had terminated and acquaintances they had miscarried. Most respondents reported telling their young children that the baby had died but did not reveal that they had chosen to end the pregnancy. A minority had not told their existing offspring about the pregnancy loss. Common reasons given for (partially) concealing a termination were: guilt over the decision; to avoid being judged; and to protect other people's feelings. Common reasons for disclosure were: others knew of the pregnancy; needing time off work; needing practical help and/or emotional support during diagnosis and termination; and wanting recognition of their loss. Positive consequences of disclosure were said to be getting more support and less criticism than expected; negative consequences included not getting the anticipated support and empathy; and encountering disapproval. Some respondents felt that concealing their pregnancy loss from their children had resulted in their confusion over the cause of their parents' distress. Some men said they found it hard to access emotional support from their social networks because of expectations about how men 'should' deal with emotions. Key conclusions and implications for practice: midwives have to make difficult judgements about what, how and when to provide information when trying to support and advise parents who have ended a pregnancy due to fetal abnormality. Further education and training in this area could be of benefit. Midwives could signpost parents to existing sources of advice around disclosure, taking into account parents' individual preferences, help parents to consider the potential implications of disclosure and concealment and different ways of disclosing. They could also recommend alternative sources of emotional support, bearing in mind that men in particular may find it harder to access support from their social networks.en_UK
dc.language.isoenen_UK
dc.publisherElsevieren_UK
dc.relationFrance E, Hunt K, Ziebland SB & Wyke S (2013) What parents say about disclosing the end of their pregnancy due to fetal abnormality. Midwifery, 29 (1), pp. 24-32. https://doi.org/10.1016/j.midw.2011.10.006en_UK
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.en_UK
dc.rights.urihttp://www.rioxx.net/licenses/under-embargo-all-rights-reserveden_UK
dc.subjectQualitative researchen_UK
dc.subjectPrenatal diagnosisen_UK
dc.subjectSelf-disclosureen_UK
dc.subjectFetal abnormalitiesen_UK
dc.subjectPrenatal diagnosisen_UK
dc.subjectScreeningen_UK
dc.subjectPregnancyen_UK
dc.titleWhat parents say about disclosing the end of their pregnancy due to fetal abnormalityen_UK
dc.typeJournal Articleen_UK
dc.rights.embargodate3000-01-01en_UK
dc.rights.embargoreason[FranceEtAl2012InpressMidwiferyDisclosingEndPregnancy.pdf] The publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.en_UK
dc.identifier.doi10.1016/j.midw.2011.10.006en_UK
dc.citation.jtitleMidwiferyen_UK
dc.citation.issn0266-6138en_UK
dc.citation.volume29en_UK
dc.citation.issue1en_UK
dc.citation.spage24en_UK
dc.citation.epage32en_UK
dc.citation.publicationstatusPublisheden_UK
dc.citation.peerreviewedRefereeden_UK
dc.type.statusVoR - Version of Recorden_UK
dc.author.emaile.f.france1@stir.ac.uken_UK
dc.contributor.affiliationHealth Sciences Research - Stirling - LEGACYen_UK
dc.contributor.affiliationInstitute for Social Marketingen_UK
dc.contributor.affiliationUniversity of Oxforden_UK
dc.contributor.affiliationUniversity of Glasgowen_UK
dc.identifier.isiWOS:000314066800007en_UK
dc.identifier.scopusid2-s2.0-84866654635en_UK
dc.identifier.wtid899227en_UK
dc.contributor.orcid0000-0003-0876-7030en_UK
dc.contributor.orcid0000-0002-5873-3632en_UK
dcterms.dateAccepted2013-01-31en_UK
dc.date.filedepositdate2013-01-28en_UK
rioxxterms.typeJournal Article/Reviewen_UK
rioxxterms.versionVoRen_UK
local.rioxx.authorFrance, Emma|0000-0003-0876-7030en_UK
local.rioxx.authorHunt, Kate|0000-0002-5873-3632en_UK
local.rioxx.authorZiebland, Sue B|en_UK
local.rioxx.authorWyke, Sally|en_UK
local.rioxx.projectInternal Project|University of Stirling|https://isni.org/isni/0000000122484331en_UK
local.rioxx.freetoreaddate3000-01-01en_UK
local.rioxx.licencehttp://www.rioxx.net/licenses/under-embargo-all-rights-reserved||en_UK
local.rioxx.filenameFranceEtAl2012InpressMidwiferyDisclosingEndPregnancy.pdfen_UK
local.rioxx.filecount1en_UK
local.rioxx.source0266-6138en_UK
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

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