Please use this identifier to cite or link to this item:
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: Involving people affected by cancer in research: a review of literature
Author(s): Hubbard, Gill
Kidd, Lisa
Donaghy, Edward
Contact Email:
Keywords: user involvement
participatory research
Cancer Research
Medical policy Social aspects
Issue Date: May-2008
Citation: Hubbard G, Kidd L & Donaghy E (2008) Involving people affected by cancer in research: a review of literature. European Journal of Cancer Care, 17 (3), pp. 233-244.
Abstract: The purpose of the literature review was to find out why people affected by cancer have been involved in research; how they have been involved and the impact of their involvement. We used systematic methods to search for literature, applied inclusion and exclusion criteria, conducted a quality appraisal, selected relevant data from the included articles for analysis, and provided a narrative summary of these data. The literature shows that people affected by cancer, particularly women with breast cancer, have been involved in a range of research programmes, projects and initiatives especially in the USA, UK, Canada and Australia. Their involvement has impacted upon research design, accrual and response rates. There is increasing recognition of the need for an infrastructure, including formal recruitment procedures, training and mentoring, to support an agenda of involvement and a need to challenge the ethos of traditional research, which does not easily lend itself to this agenda. Further critique of the role of ‘experiential knowledge’ in research is required so that researchers and people affected by cancer can work in partnership.
DOI Link: 10.1111/j.1365-2354.2007.00842.x
Rights: The publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author; you can only request a copy if you wish to use this work for your own research or private study.

Files in This Item:
File Description SizeFormat 
Hubbard - Involving people affected by cancer in research a review of the literature.pdfFulltext - Published Version105.3 kBAdobe PDFUnder Embargo until 3000-01-01    Request a copy

Note: If any of the files in this item are currently embargoed, you can request a copy directly from the author by clicking the padlock icon above. However, this facility is dependent on the depositor still being contactable at their original email address.

This item is protected by original copyright

Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.

If you believe that any material held in STORRE infringes copyright, please contact providing details and we will remove the Work from public display in STORRE and investigate your claim.