STORRE
STORRE: Stirling Online Research Repository
http://hdl.handle.net/1893/34875| Appears in Collections: | Faculty of Health Sciences and Sport Journal Articles |
| Peer Review Status: | Refereed |
| Title: | "What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?": exploring care relationships at the end of life in two life-sharing communities for people with a learning disability |
| Author(s): | Jacobs, Paula Quayle, Ethel Wilkinson, Heather |
| Contact Email: | paula.jacobs@stir.ac.uk |
| Date Deposited: | 16-Feb-2023 |
| Citation: | Jacobs P, Quayle E & Wilkinson H (2023) "What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?": exploring care relationships at the end of life in two life-sharing communities for people with a learning disability. <i>International Journal of Care and Caring</i>. |
| Abstract: | Old age is still an under-researched stage in the lives of people with a learning disability. Providing support to people towards the end of their lives can be challenging for services and involves complex ethical decision-making processes. This study explored the experiences of social care staff in two life-sharing communities, where adults with a learning disability and staff live together. Four main themes were identified, highlighting different dimensions of care. This included an emphasis on relational care, responsive care, collaborative care, and lastly practices that allowed or hindered people with a learning disability to stay within the communities till the end of their life |
| Rights: | This item has been embargoed for a period. During the embargo please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study. This is a post-peer-review, pre-copy edited version of an article published in International Journal of Care and Caring. The definitive publisher-authenticated version Jacobs P, Quayle E & Wilkinson H (2023) "What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?": exploring care relationships at the end of life in two life-sharing communities for people with a learning disability. <i>International Journal of Care and Caring</i> will be available online at: https://bristoluniversitypressdigital.com/view/journals/ijcc/ijcc-overview.xml |
| Notes: | Output Status: Forthcoming |
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| File | Description | Size | Format | |
|---|---|---|---|---|
| artice for journal of care and caring_final.pdf | Fulltext - Accepted Version | 292.4 kB | Adobe PDF | Under Embargo until 2026-01-25 Request a copy |
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