Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/24772
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to End-of-life Care in Advanced Dementia (Forthcoming/Available Online)
Authors: McCallion, Philip
Hogan, Mary
Santos, Flavia
McCarron, Mary
Service, Kathy
Stemp, Sandy
Keller, Seth
Fortea, Juan
Bishop, Kathy
Watchman, Karen
Janicki, Matthew
Contact Email: Karen.Watchman@stir.ac.uk
Keywords: dementia
end-of-life
intellectual disability
palliative
person-centered
statement
Issue Date: 9-May-2017
Citation: McCallion P, Hogan M, Santos F, McCarron M, Service K, Stemp S, Keller S, Fortea J, Bishop K, Watchman K & Janicki M (2017) Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to End-of-life Care in Advanced Dementia (Forthcoming/Available Online), Journal of Applied Research in Intellectual Disabilities.
Abstract: Background  Adults with intellectual disability are affected by dementia at equivalent and elevated rates, many surviving into advanced age. End of life care and support considerations come into play among these individuals when most are in the advanced stage of dementia.  Methods  A preliminary report summarizing available literature and making initial recommendations was developed by a workgroup, reviewed by all conference participants and then was finalized by the workgroup.  Results  The International Summit on Intellectual Disability and Dementia produced a report on End of life care in advanced dementia that provides a synthesis statement which encompasses defining the state of advanced dementia, proposes use of palliative care services (including hospice) and recommends special efforts for enabling advanced directives and advance care planning prior to the extensive progression of dementia. The Summit further recommended that when aiding adults with advanced dementia, the following be undertaken: integrative efforts between intellectual disability and palliative care providers, specialized training for carers on end of life care and supports, and involvement of adults with intellectual disability early on in their advance care planning.  Conclusions  The Consensus recommendations will ensure greater and more appropriate support at end of life for persons with intellectual disabilities and advanced dementia.
DOI Link: http://dx.doi.org/10.1111/jar.12349
Rights: Author's Accepted Manuscript: This item has been embargoed for a period. During the embargo please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.
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Notes: Additional co-author: the Working Group of the International Summit on Intellectual Disability and Dementia

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