Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/24545
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dc.contributor.authorSteel, Emmaen_UK
dc.contributor.authorHodgson, Janen_UK
dc.contributor.authorStirling, Lesleyen_UK
dc.contributor.authorWhite, Susan Men_UK
dc.date.accessioned2016-11-12T00:39:22Z-
dc.date.available2016-11-12T00:39:22Z-
dc.date.issued2014-11en_UK
dc.identifier.urihttp://hdl.handle.net/1893/24545-
dc.description.abstractThe present study aims to provide insight into the interactions between clinical geneticists and parents of children with dysmorphic features during syndrome assessment. Seven families attending a dysmorphology clinic for syndrome assessment consented to have their consultation recorded and transcribed verbatim. Content and discourse analyses were used to study the language and communication patterns of problematic and challenging sections of the consultations, primarily sections concerning the child's appearance and diagnosis which were marked by dysfluency and hesitation, indicators of problematic communication. Findings revealed that the clinical geneticists used a range of communicative strategies when discussing a child's appearance, such as comparing the child's features with those of parents or other individuals and minimizing differences. In doing so they displayed an orientation to the “face-threatening” nature of this communicative task. While geneticists discussed the child's appearance in an extremely sensitive manner, parents tended to describe their child's appearance using direct and objective language. These findings provide novel insight into the complexity of syndrome assessment consultations in a dysmorphology clinic. We suggest that parents may be seeking a more open discussion of their child's appearance, and clinician engagement with this may prove a more effective communication strategy than those currently employed, while remaining sensitive to parents' responses to such a discussion. At the start of the consultation it is important to give parents the opportunity to voice their concerns and expectations, and to explain to parents that a diagnosis may not be reached.en_UK
dc.language.isoenen_UK
dc.publisherWiley-Blackwellen_UK
dc.relationSteel E, Hodgson J, Stirling L & White SM (2014) An exploration of the communication patterns and language used between clinical geneticists and parents of children with dysmorphic features. American Journal of Medical Genetics Part A, 164 (11), pp. 2822-2833. https://doi.org/10.1002/ajmg.a.36749en_UK
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.en_UK
dc.rights.urihttp://www.rioxx.net/licenses/under-embargo-all-rights-reserveden_UK
dc.subjectdysmorphologyen_UK
dc.subjectchildrenen_UK
dc.subjectparentsen_UK
dc.subjectuncertaintyen_UK
dc.subjectsyndrome assessmenten_UK
dc.subjectcontent analysisen_UK
dc.subjectdiscourse analysisen_UK
dc.subjectpoliteness theoryen_UK
dc.titleAn exploration of the communication patterns and language used between clinical geneticists and parents of children with dysmorphic featuresen_UK
dc.typeJournal Articleen_UK
dc.rights.embargodate2999-12-24en_UK
dc.rights.embargoreason[Steel Hodgson et al. 2014.pdf] The publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.en_UK
dc.identifier.doi10.1002/ajmg.a.36749en_UK
dc.identifier.pmid25250868en_UK
dc.citation.jtitleAmerican Journal of Medical Genetics Part Aen_UK
dc.citation.issn1552-4833en_UK
dc.citation.issn1552-4825en_UK
dc.citation.volume164en_UK
dc.citation.issue11en_UK
dc.citation.spage2822en_UK
dc.citation.epage2833en_UK
dc.citation.publicationstatusPublisheden_UK
dc.citation.peerreviewedRefereeden_UK
dc.type.statusVoR - Version of Recorden_UK
dc.author.emailemma.steel@stir.ac.uken_UK
dc.citation.date23/09/2014en_UK
dc.contributor.affiliationUniversity of Melbourneen_UK
dc.contributor.affiliationUniversity of Melbourneen_UK
dc.contributor.affiliationUniversity of Melbourneen_UK
dc.contributor.affiliationUniversity of Melbourneen_UK
dc.identifier.isiWOS:000344187200020en_UK
dc.identifier.scopusid2-s2.0-84910618625en_UK
dc.identifier.wtid547762en_UK
dc.contributor.orcid0000-0001-7466-4326en_UK
dc.date.accepted2014-08-05en_UK
dcterms.dateAccepted2014-08-05en_UK
dc.date.filedepositdate2016-11-11en_UK
rioxxterms.apcnot requireden_UK
rioxxterms.typeJournal Article/Reviewen_UK
rioxxterms.versionVoRen_UK
local.rioxx.authorSteel, Emma|0000-0001-7466-4326en_UK
local.rioxx.authorHodgson, Jan|en_UK
local.rioxx.authorStirling, Lesley|en_UK
local.rioxx.authorWhite, Susan M|en_UK
local.rioxx.projectInternal Project|University of Stirling|https://isni.org/isni/0000000122484331en_UK
local.rioxx.freetoreaddate2999-12-24en_UK
local.rioxx.licencehttp://www.rioxx.net/licenses/under-embargo-all-rights-reserved||en_UK
local.rioxx.filenameSteel Hodgson et al. 2014.pdfen_UK
local.rioxx.filecount1en_UK
local.rioxx.source1552-4825en_UK
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