Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/22953
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: What do patients and the public know about clinical practice guidelines and what do they want from them? A qualitative study
Authors: Fearns, Naomi
Kelly, Joanna
Callaghan, Margaret
Graham, Karen
Loudon, Kirsty
Harbour, Robin
Santesso, Nancy
McFarlane, Emma
Thornton, Judith
Treweek, Shaun
Contact Email: kirsty.loudon@stir.ac.uk
Keywords: Guidelines
Clinical practice guideline
Patient guidelines
Patient version
Issue Date: 24-Feb-2016
Publisher: BioMed Central
Citation: Fearns N, Kelly J, Callaghan M, Graham K, Loudon K, Harbour R, Santesso N, McFarlane E, Thornton J & Treweek S (2016) What do patients and the public know about clinical practice guidelines and what do they want from them? A qualitative study, BMC Health Services Research, 16, Art. No.: 74.
Abstract: Background   Guideline producers are increasingly producing versions of guidelines for the public. The aim of this study was to explore what patients and the public understand about the purpose and production of clinical guidelines, and what they want from clinical guidelines to support their healthcare decisions.  Methods  Participants were purposively selected to represent a range of the likely users of patient versions of guidelines, including individuals with health conditions (diabetes and depression), general members of the public, health communication professionals and a group of young people. Participants were asked about their awareness and understanding of clinical guidelines and presented with scenario recommendations, or draft materials from patient guidelines to prompt discussion. Each discussion was facilitated by one or two researchers. All focus groups were recorded and transcribed prior to analysis. Data were analysed using framework analysis.  Results  We ran nine focus groups involving 62 individuals, supplemented by four interviews with people experiencing homelessness. Eight groups were held in Scotland, one in England. The four interviews were held in Scotland. The framework analysis yielded five themes: access and awareness; what patients want to know; properties of guidelines; presenting evidence; and format. Awareness of guidelines was low. Participants emphasised the need for information that enables them to choose between treatment options, including harms. They would like help with this from healthcare professionals, especially general practitioners. Participants differed in their support for the inclusion of numerical information and graphs.  Conclusions  Members of the public want information to help them choose between treatments, including information on harm, particularly to support shared decisions with health professionals. Presenting numerical information is a challenge and layered approaches that present information in stages may be helpful. Ignoring the themes identified in this study is likely to lead to materials that fail to support public and patient healthcare decisions.
Type: Journal Article
URI: http://hdl.handle.net/1893/22953
DOI Link: http://dx.doi.org/10.1186/s12913-016-1319-4
Rights: © Fearns et al. 2016 This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
Affiliation: Healthcare Improvement Scotland
Healthcare Improvement Scotland
Healthcare Improvement Scotland
Healthcare Improvement Scotland
HS - Management and Support
Healthcare Improvement Scotland
McMaster University
National Institute for Health and Care Excellence (NICE)
National Institute for Health and Care Excellence (NICE)
University of Aberdeen

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