Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/22364
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: Patient and public attitudes to and awareness of clinical practice guidelines: A systematic review with thematic and narrative syntheses
Authors: Loudon, Kirsty
Santesso, Nancy
Callaghan, Margaret
Thornton, Judith
Harbour, Jenny
Graham, Karen
Harbour, Robin
Kunnamo, Ilkka
Liira, Helena
McFarlane, Emma
Ritchie, Karen
Treweek, Shaun
Contact Email: kirsty.loudon@stir.ac.uk
Keywords: Clinical practice guidelines
Patient
Public
Attitudes
Awareness
Issue Date: Jul-2014
Publisher: BioMed Central
Citation: Loudon K, Santesso N, Callaghan M, Thornton J, Harbour J, Graham K, Harbour R, Kunnamo I, Liira H, McFarlane E, Ritchie K & Treweek S (2014) Patient and public attitudes to and awareness of clinical practice guidelines: A systematic review with thematic and narrative syntheses, BMC Health Services Research, 14 (1), Art. No.: 321.
Abstract: Background: Clinical practice guidelines are typically written for healthcare providers but there is increasing interest in producing versions for the public, patients and carers. The main objective of this review is to identify and synthesise evidence of the public’s attitudes towards clinical practice guidelines and evidence-based recommendations written for providers or the public, together with their awareness of guidelines.  Methods: We included quantitative and qualitative studies of any design reporting on public, patient (and their carers) attitudes and awareness of guidelines written for providers or patients/public. We searched electronic databases including MEDLINE, PSYCHINFO, ERIC, ASSIA and the Cochrane Library from 2000 to 2012. We also searched relevant websites, reviewed citations and contacted experts in the field. At least two authors independently screened, abstracted data and assessed the quality of studies. We conducted a thematic analysis of first and second order themes and performed a separate narrative synthesis of patient and public awareness of guidelines.  Results: We reviewed 5415 records and included 26 studies (10 qualitative studies, 13 cross sectional and 3 randomised controlled trials) involving 24 887 individuals. Studies were mostly good to fair quality. The thematic analysis resulted in four overarching themes: Applicability of guidelines; Purpose of guidelines for patient; Purpose of guidelines for health care system and physician; and Properties of guidelines. Overall, participants had mixed attitudes towards guidelines; some participants found them empowering but many saw them as a way of rationing care. Patients were also concerned that the information may not apply to their own health care situations. Awareness of guidelines ranged from 0-79%, with greater awareness in participants surveyed on national guideline websites.  Conclusion: There are many factors, not only formatting, that may affect the uptake and use of guideline-derived material by the public. Producers need to make clear how the information is relevant to the reader and how it can be used to make healthcare improvements although there were problems with data quality. Awareness of guidelines is generally low and guideline producers cannot assume that the public has a more positive perception of their material than of alternative sources of health information.
Type: Journal Article
URI: http://hdl.handle.net/1893/22364
DOI Link: http://dx.doi.org/10.1186/1472-6963-14-321
Rights: © 2014 Loudon et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
Affiliation: HS - Management and Support
McMaster University
Healthcare Improvement Scotland
National Institute for Health and Care Excellence (NICE)
Healthcare Improvement Scotland
Healthcare Improvement Scotland
Healthcare Improvement Scotland
Duodecim Medical Publications Ltd
Healthcare Improvement Scotland
National Institute for Health and Care Excellence (NICE)
NHS Quality Improvement Scotland
University of Aberdeen

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