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Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: Distress, concerns and unmet needs in survivors of head and neck cancer: A cross-sectional survey (Forthcoming/Available Online)
Authors: Wells, Mary
Cunningham, Margaret
Lang, Heidi
Swartzman, Samantha
Philp, Julie
Taylor, Lesley
Thomson, Jane
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Keywords: unmet needs
head and neck cancer
Patient Concerns Inventory
Distress Thermometer
Issue Date: 7-Aug-2015
Publisher: Wiley-Blackwell
Citation: Wells M, Cunningham M, Lang H, Swartzman S, Philp J, Taylor L & Thomson J Distress, concerns and unmet needs in survivors of head and neck cancer: A cross-sectional survey (Forthcoming/Available Online), European Journal of Cancer Care.
Abstract: The aim of this study was to identify the distress, unmet needs and concerns of head and neck cancer (HNC) survivors in the first 5years after treatment. Two hundred and eighty HNC survivors from three Scottish health boards responded to a cross-sectional postal survey in 2011. Questionnaires included the Distress Thermometer, Patient Concerns Inventory (PCI) and an adapted version of the PCI to measure unmet needs. One-third of the survivors had moderate or severe levels of distress, and 74% had at least one unmet need. The most common concerns and unmet needs included oral and eating problems, fear of recurrence and fatigue. Multivariate analysis revealed that being younger, out of work (not retired), ever having had a feeding tube fitted, having a greater number of comorbidities and living alone were associated with higher levels of distress, concerns and unmet needs. The diversity of concerns and unmet needs identified in this study highlights the importance of holistic needs assessment as part of follow-up care for HNC survivors with tailoring of support for particular concerns. Specific information resources and self-management strategies are required to help HNC survivors with the practical and functional consequences of HNC treatment.
Type: Journal Article
DOI Link:
Rights: The publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.
Affiliation: NMAHP Research
NMAHP Research
University of Dundee
University of Dundee
NHS Fife
NHS Tayside
NHS Forth Valley

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