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Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: Protocol for a systematic review of screening tools for fear of recurrent illness in common life-threatening diseases
Authors: Jones, Jenny
Kane, Paul
Polson, Rob
Leslie, Stephen
Hulbert-Williams, Nick
Simard, Sebastien
Ozakinci, Gozde
Hubbard, Gill
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Keywords: Fear of recurrence
Myocardial infarction
Acute coronary syndrome
Psychometric testing
Issue Date: Mar-2015
Publisher: BioMed Central
Citation: Jones J, Kane P, Polson R, Leslie S, Hulbert-Williams N, Simard S, Ozakinci G & Hubbard G (2015) Protocol for a systematic review of screening tools for fear of recurrent illness in common life-threatening diseases, Systematic Reviews, 4 (1), Art. No.: 10.
Abstract: Background: A myocardial infarction (MI) (‘heart attack') can be intensely stressful, and the impact of this event can leave patients with clinically significant post-MI stress symptoms. Untreated stress can make heart disease worse. Few tools are available that screen for specific thoughts or beliefs that can trigger post-MI stress responses. In other life-threatening illnesses, fear of recurrence (FoR) of illness has been identified as a key stressor, and screening tools have been developed to identify this. The aim of this review is to identify FoR screening tools used in other common life-threatening diseases that report on the development of the tool, to assess if there are any that can be adapted for use in MI survivors so that those with high levels of FoR can be identified and helped. Methods/Design: The review will evaluate full FoR screening tools and methods of measurement used in common life-threatening disease clinical populations. The Campbell and Cochrane Libraries, Cumulative Index of Nursing and Allied Health Literature (CINAHL), PsycINFO, MEDLINE, Embase, Applied Social Sciences Index and Abstracts (ASSIA), Published International Literature on Traumatic Stress (PILOTS), Social Services Abstracts, Sociological Abstracts, Web of Knowledge, Health and Psychosocial Instruments and SCOPUS databases will be searched for relevant studies published from database inception. Reference lists and published reviews/meta-analyses will also be searched. All titles and abstracts will be screened and relevant full-text versions retrieved by two reviewers, who will then extract all the data. Each will independently review all data extracted by the other. Selected studies will also be assessed by two independent researchers using the COnsensus-based standards for the Selection of health status measurement INstruments (COSMIN) checklist and other quality criteria. This will be done to evaluate the degree to which their measurement properties meet the standards for good methodological quality. Disagreement will be resolved through consensus. Discussion: Untreated post-MI stress has a considerable psychological and physical impact on MI survivors. Therefore, there is a critical need to develop a screening tool to identify fear of recurrent MI so that those affected can be identified and directed to appropriate support interventions. This proposed research will enable a tool to be developed and adapted for use in the MI survivor patient population. Systematic review registration: PROSPERO: CRD42014010500
Type: Journal Article
DOI Link:
Rights: © 2015 Jones et al.; licensee BioMed Central. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver ( applies to the data made available in this article, unless otherwise stated.
Affiliation: University of Plymouth
University of Stirling
University of Stirling
NHS Highland
University of Chester
Universite Laval, Canada
University of St Andrews
Cancer Care Research Centre

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