Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/21627
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: Conceptualising psychological distress in families in palliative care: findings from a systematic review
Authors: Carolan, Clare
Smith, Annetta
Forbat, Liz
Contact Email: clare.carolan@stir.ac.uk
Keywords: Palliative care
family review
systematic
distress
Issue Date: Jul-2015
Publisher: SAGE
Citation: Carolan C, Smith A & Forbat L (2015) Conceptualising psychological distress in families in palliative care: findings from a systematic review, Palliative Medicine, 29 (7), pp. 605-632.
Abstract: Background: Adult palliative care patients and their family members experience significant psychological distress and morbidity. Psychosocial interventions adopting a systemic approach may provide a cogent model to improve the psychosocial care of families in palliative care. To facilitate design of these interventions, the construct of psychological distress in families in palliative care should be empirically derived. Aim: To ascertain how psychological distress is conceptualised in families receiving palliative care. Design: A systematic review of the literature; this was followed by a thematic analysis and narrative synthesis. Data sources: Using pre-defined search terms, four electronic databases (MEDLINE, CINAHL, PsycINFO and Behavioural Sciences collections) were searched with no date restrictions imposed. Pre-determined inclusion and exclusion criteria were then applied. Results: A total of 32 papers were included in the review. Two findings emerged from data synthesis. First, distress is conceptualised as a multi-dimensional construct but little consensus exists as to how to capture and measure distress. Second, distress in the families within these studies can be conceptualised using a tiered approach, moving from individual non-interactive depictions of distress through gradations of interaction to convey a systemic account of distress within the family system. Thus, distress shifts from a unitary to a systemic construct. Conclusion: Currently, there is a paucity of research examining distress informed by family systems theories. This review proposes that distress in families in palliative care can be conceptualised and illustrated within a tiered model of distress. Further research is merited to advance current explanatory frameworks and theoretical models of distress.
Type: Journal Article
URI: http://hdl.handle.net/1893/21627
DOI Link: http://dx.doi.org/10.1177/0269216315575680
Rights: The publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.
Affiliation: Faculty of Health Sciences and Sport
HS Research - W Isles
HS Research - Stirling

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