Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/1636
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dc.contributor.authorHarris, Fiona Margareten_UK
dc.contributor.authorKendall, Marilynen_UK
dc.contributor.authorBentley, Aen_UK
dc.contributor.authorMaguire, Romaen_UK
dc.contributor.authorWorth, Alisonen_UK
dc.contributor.authorMurray, Scott Aen_UK
dc.contributor.authorBoyd, Kirstyen_UK
dc.contributor.authorBrown, Duncanen_UK
dc.contributor.authorKearney, Noraen_UK
dc.contributor.authorSheikh, Azizen_UK
dc.date.accessioned2017-09-28T02:58:52Z-
dc.date.available2017-09-28T02:58:52Zen_UK
dc.date.issued2008-07en_UK
dc.identifier.urihttp://hdl.handle.net/1893/1636-
dc.description.abstractThe objectives of this review were to assess the methods and approaches applied to end-of-life cancer research based on papers focusing on approaches or methodological issues related to seeking the views of people affected by terminal cancer. A comprehensive search of 10 databases (January 1980–February 2004) was undertaken. References were screened, quality assessed and data extracted by two reviewers. Analysis followed a meta-narrative approach. Fifteen papers were included. They discussed ‘traditional’ approaches, such as focus groups, interviews, surveys, as well as innovative approaches allied to the arts. They reveal that mixed methods are gaining popularity. The emotional demands placed on researchers and the ethical issues involved in this research area were also discussed. We concluded that researchers should embrace innovative approaches from other areas of social science, such as the use of arts-based techniques. This may facilitate recruitment of the hard-to-reach groups and engage with experiences that may be otherwise difficult to verbalize. Although researching the needs of the dying carries challenges, these are not the exclusive domain of the cancer field. This study reveals that diverse methods, from research-based drama to postal questionnaires, can enhance end-of-life research. However, this review reveals the need for more methodological work to be undertaken and disseminated.en_UK
dc.language.isoenen_UK
dc.publisherWiley-Blackwellen_UK
dc.relationHarris FM, Kendall M, Bentley A, Maguire R, Worth A, Murray SA, Boyd K, Brown D, Kearney N & Sheikh A (2008) Researching experiences of terminal cancer: a systematic review of methodological issues and approaches. European Journal of Cancer Care, 17 (4), pp. 377-386. https://doi.org/10.1111/j.1365-2354.2007.00880.xen_UK
dc.rightsThe publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author; you can only request a copy if you wish to use this work for your own research or private study.en_UK
dc.rights.urihttp://www.rioxx.net/licenses/under-embargo-all-rights-reserveden_UK
dc.subjectcanceren_UK
dc.subjectpatient experienceen_UK
dc.subjectresearch methodsen_UK
dc.subjectsystematic reviewen_UK
dc.subjectPatient participationen_UK
dc.subjectCancer Patientsen_UK
dc.subjectCancer Researchen_UK
dc.titleResearching experiences of terminal cancer: a systematic review of methodological issues and approachesen_UK
dc.typeJournal Articleen_UK
dc.rights.embargodate3000-01-01en_UK
dc.rights.embargoreason[EJCC Paper Harris et al 2008.pdf] The publisher does not allow this work to be made publicly available in this Repository therefore there is an embargo on the full text of the work.en_UK
dc.identifier.doi10.1111/j.1365-2354.2007.00880.xen_UK
dc.identifier.pmid18485015en_UK
dc.citation.jtitleEuropean Journal of Cancer Careen_UK
dc.citation.issn1365-2354en_UK
dc.citation.issn0961-5423en_UK
dc.citation.volume17en_UK
dc.citation.issue4en_UK
dc.citation.spage377en_UK
dc.citation.epage386en_UK
dc.citation.publicationstatusPublisheden_UK
dc.citation.peerreviewedRefereeden_UK
dc.type.statusVoR - Version of Recorden_UK
dc.author.emailfiona.harris@stir.ac.uken_UK
dc.contributor.affiliationNMAHPen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.contributor.affiliationStrathcarron Hospiceen_UK
dc.contributor.affiliationCancer Care Research Centre - LEGACYen_UK
dc.contributor.affiliationUniversity of Stirlingen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.contributor.affiliationSt Columba's Hospiceen_UK
dc.contributor.affiliationHealth Sciences Research - Stirling - LEGACYen_UK
dc.contributor.affiliationUniversity of Edinburghen_UK
dc.identifier.isiWOS:000257652900007en_UK
dc.identifier.scopusid2-s2.0-48249140250en_UK
dc.identifier.wtid813828en_UK
dc.contributor.orcid0000-0003-3258-5624en_UK
dc.date.accepted2007-10-01en_UK
dcterms.dateAccepted2007-10-01en_UK
dc.date.filedepositdate2009-09-24en_UK
rioxxterms.typeJournal Article/Reviewen_UK
rioxxterms.versionVoRen_UK
local.rioxx.authorHarris, Fiona Margaret|0000-0003-3258-5624en_UK
local.rioxx.authorKendall, Marilyn|en_UK
local.rioxx.authorBentley, A|en_UK
local.rioxx.authorMaguire, Roma|en_UK
local.rioxx.authorWorth, Alison|en_UK
local.rioxx.authorMurray, Scott A|en_UK
local.rioxx.authorBoyd, Kirsty|en_UK
local.rioxx.authorBrown, Duncan|en_UK
local.rioxx.authorKearney, Nora|en_UK
local.rioxx.authorSheikh, Aziz|en_UK
local.rioxx.projectInternal Project|University of Stirling|https://isni.org/isni/0000000122484331en_UK
local.rioxx.freetoreaddate3000-01-01en_UK
local.rioxx.licencehttp://www.rioxx.net/licenses/under-embargo-all-rights-reserved||en_UK
local.rioxx.filenameEJCC Paper Harris et al 2008.pdfen_UK
local.rioxx.filecount1en_UK
local.rioxx.source0961-5423en_UK
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles

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