Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/1579

Appears in Collections:School of Health Sciences Journal Articles
Peer Review Status: Refereed
Title: Patient and public involvement: models and muddles
Authors: Forbat, Liz
Hubbard, Gill
Kearney, Nora
Contact Email: elizabeth.forbat@stir.ac.uk
Keywords: nurses
nursing
patient participation
policy
qualitative study
research in practice
Issue Date: Sep-2009
Publisher: Wiley-Blackwell
Citation: Forbat L, Hubbard G & Kearney N (2009) Patient and public involvement: models and muddles, Journal of Clinical Nursing, 18 (18), pp. 2547-2554.
Abstract: Aims and objectives. This paper explores the range of models of involvement which are drawn upon in an empirical study and which are invoked in the literature and policy. The results and discussion of the study help to excavate and explore the muddle of conceptualisations of involvement and how this leads to difficulties for practitioners, patients and managers in implementing the relevant policy. Background. Patient and public involvement has developed an important profile internationally within health and social care policy. However, its importance as a rhetorical device has not been accompanied by adequate developments in how it is operationalised. Design. Cross-sectional study, with an intervention conducted at three sites, and non-intervention measures taken at two control sites. Methods. This paper draws on an empirical study of involvement. Focus groups were conducted with a lung cancer team and people affected by cancer at five health boards across Scotland. Chief executives of each of these five health boards also took part in individual interviews. Participants were asked to describe their ideas of what involvement is and their application of it. Results. A range of ways of conceptualising involvement were apparent. Few of these moved beyond the use of patient satisfaction questionnaires. At times, troubling understandings were articulated, for example, using public meetings to communicate decisions about service closures to the public. Conclusion. The slow escalation of involvement is in part because of the myriad ways in which it is conceptualised and discussed. Thus, we conclude that one of the greatest barriers to truly integrating patient involvement into health services, policy and research is the conceptual muddle with which involvement is articulated, understood and actioned. Relevance to clinical practice. Clinicians need to be supported to seek clarity in the use and operationalisation of involvement if the agenda is to be truly adopted and strengthened.
Type: Journal Article
URI: http://hdl.handle.net/1893/1579
DOI Link: http://dx.doi.org/10.1111/j.1365-2702.2008.02519.x
Rights: The publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author; you can only request a copy if you wish to use this work for your own research or private study.
Affiliation: Cancer Care Research Centre
Cancer Care Research Centre
NMH Research - Stirling

Files in This Item:
File Description SizeFormat 
Forbat - Patient and public involvement models and muddles.pdf124.3 kBAdobe PDFUnder Embargo until 31/12/2999     Request a copy

Note: If any of the files in this item are currently embargoed, you can request a copy directly from the author by clicking the padlock icon above. However, this facility is dependant on the depositor still being contactable at their original email address.

This item is protected by original copyright



Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.

If you believe that any material held in STORRE infringes copyright, please contact library@stir.ac.uk providing details and we will remove the Work from public display in STORRE and investigate your claim.