Please use this identifier to cite or link to this item:
Appears in Collections:Management, Work and Organisation Journal Articles
Peer Review Status: Refereed
Title: The Genetic Counseling Outcome Scale: A new patient-reported outcome measure for clinical genetics services
Authors: McAllister, Marion
Wood, Alex M
Dunn, Graham
Shiloh, Shoshana
Todd, Chris
Contact Email:
Keywords: empowerment
outcome measures
scale development
Issue Date: May-2011
Publisher: Wiley-Blackwell / John Wiley and Sons
Citation: McAllister M, Wood AM, Dunn G, Shiloh S & Todd C (2011) The Genetic Counseling Outcome Scale: A new patient-reported outcome measure for clinical genetics services, Clinical Genetics, 79 (5), pp. 413-424.
Abstract: The aim of this study was to develop a patient-reported outcome measure (PROM) for clinical genetics services. Previous research was used to develop a draft 84-item questionnaire, which was completed by 527 members of patient support groups. Responses were subjected to exploratory factor analysis (EFA). Parallel analysis was used to identify the number of factors to extract using oblique rotation. Twenty-four questions were selected to form the Genetic Counseling Outcome Scale (GCOS-24). Two hundred and forty-one patients completed a questionnaire pack before and after attendance at a genetics clinic that included the GCOS-24, and validated measures of health locus of control, perceived personal control, anxiety, depression, satisfaction with life and authenticity. Concurrent validity of the GCOS-24 was assessed using bivariate correlation. Sensitivity to change of the GCOS-24 was assessed using analysis of variance. EFA identified a single overarching construct consisting of seven dimensions. Internal consistency (alpha = 0.87) and test-retest reliability (r = 0.86) are good. The GCOS-24 shows convergent and divergent validities, and sensitivity to change over time with a medium-to-large effect size (Cohen's d = 0.70). The GCOS-24 has potential as a clinical genetics-specific PROM.
Type: Journal Article
DOI Link:
Rights: The publisher does not allow this work to be made publicly available in this Repository. Please use the Request a Copy feature at the foot of the Repository record to request a copy directly from the author. You can only request a copy if you wish to use this work for your own research or private study.
Affiliation: University of Manchester
University of Manchester
Tel Aviv University
University of Manchester

Files in This Item:
File Description SizeFormat 
Wood_2011_The_Genetic_Counseling_Outcome_Scale.pdf549.27 kBAdobe PDFUnder Embargo until 31/12/2999     Request a copy

Note: If any of the files in this item are currently embargoed, you can request a copy directly from the author by clicking the padlock icon above. However, this facility is dependant on the depositor still being contactable at their original email address.

This item is protected by original copyright

Items in the Repository are protected by copyright, with all rights reserved, unless otherwise indicated.

If you believe that any material held in STORRE infringes copyright, please contact providing details and we will remove the Work from public display in STORRE and investigate your claim.