Please use this identifier to cite or link to this item: http://hdl.handle.net/1893/1022
Appears in Collections:Faculty of Health Sciences and Sport Journal Articles
Peer Review Status: Refereed
Title: Exploring the experiences and perspectives of families using a children’s hospice and professionals providing hospice care to identify future research priorities for children’s hospice care
Authors: Malcolm, Cari
Forbat, Liz
Knighting, Katherine
Kearney, Nora
Contact Email: cari.malcolm@stir.ac.uk
Keywords: hospice care
palliative care services
research priorities
qualitative
Issue Date: Dec-2008
Publisher: Sage
Citation: Malcolm C, Forbat L, Knighting K & Kearney N (2008) Exploring the experiences and perspectives of families using a children’s hospice and professionals providing hospice care to identify future research priorities for children’s hospice care, Palliative Medicine, 22 (8), pp. 921-928.
Abstract: Objective: To generate a list of priority topics for children’s hospice care research in Scotland from the perspective of its key stakeholders. Method: Qualitative semi-structured interviews with families using hospice services (n=5), four focus groups with hospice staff and volunteers (n=44) and telephone interviews with professionals associated with the hospice (n=18). Results: Fourteen broad themes emerged following thematic content and interpretive analysis of the interview data. Some of the research themes were specific to certain stakeholder groups, whereas other themes were identified unanimously across all of the stakeholder groups as being priority areas for future research. Increasing awareness of and improving access to children’s hospice care, hospice and respite care needs of young people, community/home care and issues related to supporting the wider family arose, independently, in all three stakeholder groups as being priority topics for future research. Conclusion: A greater evidence base is required in the field of children’s palliative care and the topics researched should be identified and led by those most closely involved in the hospices. Engaging families and care providers in the process of identifying research priorities resulted in the development of an extensive research agenda, which will contribute to quality hospice care for children and families.
Type: Journal Article
URI: http://hdl.handle.net/1893/1022
DOI Link: http://dx.doi.org/10.1177/0269216308098214
Rights: The final, definitive version of this article has been published in the Journal, Palliative Medicine, Vol 22 / Issue Number 8, 2008 © SAGE Publications, Inc. by SAGE Publications, Inc. at the Palliative Medicine page: http://pmj.sagepub.com/ on SAGE Journals Online: http://online.sagepub.com/
Affiliation: HS Research - Stirling
Cancer Care Research Centre
Cancer Care Research Centre
HS Research - Stirling

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